I remember when I met my first IBD Nurse back in 2009 at Chelsea and Westminster. Her name was Stephanie and she was the support I needed at a time when it seemed like my whole world was about to change. She spoke to me like a person - not just a hospital number - and understood that there was an emotional side to my diagnosis and that it was important to know she was there if and when I needed her. Her role for me at the time included everything from a long conversation at my appointments, ending them with that reassuring squeeze; right up to sending her a text message when I wasn't sure if I was A&E worthy with one of my many abscesses.
I'm now in a fortunate position again where at my current hospital there are a team of Specialist IBD Nurses, with a dedicated phone number should I have any queries about my care or condition. But I know I'm one of the lucky ones to have these amazing people at my disposal. There are countless IBD patients who are yet to experience how beneficial Specialist IBD Nurses can be.
According to the Crohn's & Colitis UK website, across the UK there are at least 100,000 people with IBD that don't have access to a Specialist IBD Nurse. With 63% of IBD services in the UK unable to meet the needs of everyone affected.
"[Specialist IBD Nurses] are a lifeline, providing vital information and support in the most appropriate way for each patient. The care they deliver is invaluable and they help hundreds and thousands of people cope with this devastating disease. We need to shout loudly the importance of Specialist IBD Nurses to ensure more patients have access to them."
Their campaign 'More IBD Nurses - Better Care' still needs a few signatures to reach their goal of 1000 people. Please take a look and if it matters to you, please sign!
There are around 300,000 of us in the UK, and millions more around the world living with IBD: we need to use #worldIBDday to continue to spread awareness and make a difference where we can.
X
Across
the UK, at least 100,000 people with Crohn’s and Colitis don't have
access to a Specialist IBD Nurse and 63% of IBD services in the UK don't
have enough Specialist Nurses to meet the needs of everyone affected. -
See more at:
https://www.crohnsandcolitis.org.uk/get-involved/world-ibd-day#sthash.VPtKm7VK.dpuf
That’s why we’re asking you to go purple on World IBD Day, Thursday 19 May,
to help raise awareness of the 300,000 people in the UK, as well as
millions more around the world, who are living with Inflammatory Bowel
Disease (IBD).
This year we also want to tell everyone about the importance of Specialist IBD Nurses who make such a big difference to patients’ lives.
Across the UK, at least 100,000 people with Crohn’s and Colitis don't have access to a Specialist IBD Nurse and 63% of IBD services in the UK don't have enough Specialist Nurses to meet the needs of everyone affected.
They are a lifeline, providing vital information and support in the most appropriate way for each patient. The care they deliver is invaluable and they help hundreds of thousands of people cope with this devastating disease. We need to shout loudly about the importance of Specialist IBD Nurses to ensure that more patients have access to them.
By joining our 'More IBD Nurses - Better Care campaign, you'll be lending your voice to call for better access to Specialist IBD Nurses, meaning better care across the UK.
- See more at: https://www.crohnsandcolitis.org.uk/get-involved/world-ibd-day#sthash.VPtKm7VK.dpuf
This year we also want to tell everyone about the importance of Specialist IBD Nurses who make such a big difference to patients’ lives.
Across the UK, at least 100,000 people with Crohn’s and Colitis don't have access to a Specialist IBD Nurse and 63% of IBD services in the UK don't have enough Specialist Nurses to meet the needs of everyone affected.
They are a lifeline, providing vital information and support in the most appropriate way for each patient. The care they deliver is invaluable and they help hundreds of thousands of people cope with this devastating disease. We need to shout loudly about the importance of Specialist IBD Nurses to ensure that more patients have access to them.
By joining our 'More IBD Nurses - Better Care campaign, you'll be lending your voice to call for better access to Specialist IBD Nurses, meaning better care across the UK.
- See more at: https://www.crohnsandcolitis.org.uk/get-involved/world-ibd-day#sthash.VPtKm7VK.dpuf
That’s why we’re asking you to go purple on World IBD Day, Thursday 19 May,
to help raise awareness of the 300,000 people in the UK, as well as
millions more around the world, who are living with Inflammatory Bowel
Disease (IBD).
This year we also want to tell everyone about the importance of Specialist IBD Nurses who make such a big difference to patients’ lives.
Across the UK, at least 100,000 people with Crohn’s and Colitis don't have access to a Specialist IBD Nurse and 63% of IBD services in the UK don't have enough Specialist Nurses to meet the needs of everyone affected.
They are a lifeline, providing vital information and support in the most appropriate way for each patient. The care they deliver is invaluable and they help hundreds of thousands of people cope with this devastating disease. We need to shout loudly about the importance of Specialist IBD Nurses to ensure that more patients have access to them.
By joining our 'More IBD Nurses - Better Care campaign, you'll be lending your voice to call for better access to Specialist IBD Nurses, meaning better care across the UK.
- See more at: https://www.crohnsandcolitis.org.uk/get-involved/world-ibd-day#sthash.VPtKm7VK.dpuf
This year we also want to tell everyone about the importance of Specialist IBD Nurses who make such a big difference to patients’ lives.
Across the UK, at least 100,000 people with Crohn’s and Colitis don't have access to a Specialist IBD Nurse and 63% of IBD services in the UK don't have enough Specialist Nurses to meet the needs of everyone affected.
They are a lifeline, providing vital information and support in the most appropriate way for each patient. The care they deliver is invaluable and they help hundreds of thousands of people cope with this devastating disease. We need to shout loudly about the importance of Specialist IBD Nurses to ensure that more patients have access to them.
By joining our 'More IBD Nurses - Better Care campaign, you'll be lending your voice to call for better access to Specialist IBD Nurses, meaning better care across the UK.
- See more at: https://www.crohnsandcolitis.org.uk/get-involved/world-ibd-day#sthash.VPtKm7VK.dpuf
That’s why we’re asking you to go purple on World IBD Day, Thursday 19 May,
to help raise awareness of the 300,000 people in the UK, as well as
millions more around the world, who are living with Inflammatory Bowel
Disease (IBD).
This year we also want to tell everyone about the importance of Specialist IBD Nurses who make such a big difference to patients’ lives.
Across the UK, at least 100,000 people with Crohn’s and Colitis don't have access to a Specialist IBD Nurse and 63% of IBD services in the UK don't have enough Specialist Nurses to meet the needs of everyone affected.
They are a lifeline, providing vital information and support in the most appropriate way for each patient. The care they deliver is invaluable and they help hundreds of thousands of people cope with this devastating disease. We need to shout loudly about the importance of Specialist IBD Nurses to ensure that more patients have access to them.
By joining our 'More IBD Nurses - Better Care campaign, you'll be lending your voice to call for better access to Specialist IBD Nurses, meaning better care across the UK.
- See more at: https://www.crohnsandcolitis.org.uk/get-involved/world-ibd-day#sthash.VPtKm7VK.dpuf
This year we also want to tell everyone about the importance of Specialist IBD Nurses who make such a big difference to patients’ lives.
Across the UK, at least 100,000 people with Crohn’s and Colitis don't have access to a Specialist IBD Nurse and 63% of IBD services in the UK don't have enough Specialist Nurses to meet the needs of everyone affected.
They are a lifeline, providing vital information and support in the most appropriate way for each patient. The care they deliver is invaluable and they help hundreds of thousands of people cope with this devastating disease. We need to shout loudly about the importance of Specialist IBD Nurses to ensure that more patients have access to them.
By joining our 'More IBD Nurses - Better Care campaign, you'll be lending your voice to call for better access to Specialist IBD Nurses, meaning better care across the UK.
- See more at: https://www.crohnsandcolitis.org.uk/get-involved/world-ibd-day#sthash.VPtKm7VK.dpuf
