Sunday, 13 June 2021

All the Things

Not really sure how to start these posts now, when it’s more of a current health update, as opposed to the woes of yesteryear (NB: 2020). But if I’m going to ramble on about certain IBD situs, then I guess I might as well keep you informed with the now...

Had my appointment with Gastro on Monday. Essentially my bloods say I’m anaemic again and I need another iron infusion; they want to get up my arse with another colonoscopy to assess post-op if my 12 weekly home injections of biologic meds needs increasing to every 8 weeks instead; to try not to lift my sons due to the abdominal hernias and then could I please shit in a pot for a stool sample (my words, not theirs). All this before pending surgery, if covid deadlines allow. So that’s a barrel of laughs ahead!

And whilst I’m dreading any letter that arrives with a hospital postmark in case it’s my kidney operation date, I had one arrive this week for the eye hospital because *spoiler alert* apparently Crohn’s can also affect your eyeballs and get inflamed there too. Specsavers weren’t too sure what was going on in my left eye and thought it best I got referred to the eye specialists. Lovely time.

I mean, I’d be lying if I said I’m ok with the volume of things that seem to be happening in one go? So as a distraction I’m going to try and complete my half marathon walk this coming week. Ideally in one day, but, you know, I’m a little bit broken inside ha. Plus it’s also very warm at the moment - don’t want to be chafing as I stride up a hill with a big stick.

Will let you know when I’ve walked my walk and whether I can stand up by the end of it. For now though, I plan on sitting in my garden in the sunshine and listen to my children play. Make the most of the fleeting British summertime.

X

My JustGiving page 

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Wednesday, 20 March 2019

Second Fitting

I say second; it was the second occasion and only one seizure, as opposed to the first instance of multiple seizures with what seemed like no end in sight.

It was our son’s outpatient appointment on Friday following up from everything that went on 6 weeks ago. Off we sent him to nursery, as per, on the basis we’d be picking him up at lunchtime to take him to the hospital. He’d been a bit snotty that morning so we gave him some Calpol – as you do – but didn’t think too much of it because he was fine? I got a call an hour later from the nursery to say that they’d taken his temperature and it was up past 39 now (considering he’d had medicine less than an hour prior, this didn’t sit too well). My husband went to collect him and I said how I’d meet them at the hospital as planned, later on that afternoon.

But then I got another call from the nursery, from my husband’s mobile. Not to panic, but he’s with our little boy and the ambulance is on its way as he’s having a seizure. My heart sank. I cried a bit.

I left work and drove straight to the nursery to find my two boys in the back of the ambulance, critical care on its way and prepping to do blue lights into town to the hospital. From what I could gather, there was only one seizure this time… but it lasted twenty minutes. So, it’s still atypical. We still don’t know why it’s happening. The only constant we have so far between these two occasions, is that his temperature had spiked. Except this time there were no obvious leads into the fitting, as in he wasn’t visibly ill on Thursday. Whereas last time he’d been a bit clingy and feeling sorry for himself that week and you could have said he was under the weather, somewhat. But off we went with the sirens to A&E at the children's hospital.
However this time I felt a strange sense of calm. He’d only had one fit. He’d stopped on his own. He didn’t need additional intervention for anything. Just some oxygen, I mean sure, his little bod was stressed. But he was talking, and he wanted to eat and he wanted to drink. As long as there were no more fits, we were just going to be observed by the doctors: the usual obs plus prepping his arms with ‘magic cream’ in case we needed bloods and (somehow?!) we needed to get a urine sample off of a toddler who is still learning how to wee in a toilet. Help.

Long story short, his obs were fine and remained stable the whole time we were there. The only bit of drama was when we tried to do his urine sample; he ended up doing a weewee all over his Daddy’s leg like a scene out of Dumb & Dumber. Little bit of a dribble to start with which we knew wouldn’t be enough for them to test. But then the wee just kept coming! The pot was filling up and then the power of the weeing meant it was now going in and essentially straight back out onto my other half. Oh how we laughed. The delirium/relief/tiredness from the morning’s events had kicked in. And there we were, in A&E, sick and injured children around us. And we were laughing. One of us covered in piss and the other one holding said piss, in a pot. And our boy, naked from the waist down looking at us like we’re mental. But the wee was fine. He was fine. We were allowed to go home.

So until he fits without a temperature, we’re assuming febrile convulsions, as before. If he fits otherwise then we most likely have an underlying issue that needs to be found. We’re due an EEG in the coming weeks to check his little head and then the rearranged outpatient appointment to follow.

It’s obviously just going to be one of those things and we simply have to hope that each time it happens, the seizures are few and far between and that we’ll get to the bottom of it sooner rather than later. Because it just makes you realise how fragile your little person is. But equally, how tough they are too.

X

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Tuesday, 30 January 2018

Ass Issues

Needless to say it's certainly been a little while! And even though it seems wildly out of context, Merry Christmas and a Happy New Year to all. So now to 2018.

Brief update on what's been happening: got discharged from hospital after my stay in November (don't think I'd cope if I was still there now) and I had everything crossed for a lovely normal Christmas period. Wanted to start 2018 with a 'new year, new me' attitude and all that shite...Dyed my hair blonde. Strong start. 

From a general Crohn's point of view though, we made it to January in a relatively normal state - no more hospital admissions, and I will take the small wins as and where I can! Also had both an outpatient appointment and a catch up pre-Christmas with my consultant. I mean it wasn't great news?! Essentially, your inflammatory markers should be around 50 and mine was coming in at 507. Whoopsy. Have a vitamin D deficiency too, but as far as I'm concerned, if ever there was an excuse to go ahead and get the honeymoon booked it was my body medically crying out for a bit of sunshine. And I finally got my iron infusion - second time lucky as the first time I had a temperature after the flu jab. Swings, roundabouts, etc. Was also still on the waiting list for the EUA from September - and herein lay the problem; THAT'S A VERY LONG TIME TO HAVE A POORLY BOTTOM.
But as of yesterday, I got my long-awaited EUA. All up in my personal space trying to figure out what exactly is happening with my ass. The surgeon came to see me beforehand as they do, and tried to explain to me what was going to happen. As with any type of IBD surgery, it's very much a case of consent to almost everything and then see what you wake up with. I know this. Yesterday was my 16th time in theatre. It's just a bit tough when they essentially say they don't know what's wrong with you.

I had an MRI in November and it showed that there was unusual activity in my pelvis. So then I was sent for the flexible sigmoidoscopy but they couldn't find anything? Yesterday's surgeon spoke to the people who carried out the MRI and the Flexi to literally try and get to the bottom of it. But to no avail, it seemed. The surgeon also mentioned that maybe the only way we can stop my bottom being such a pain, is to stop using it all together. That's an intimidating thought as having a permanent bag in this scenario would be more of a choice, rather than a necessity from emergency surgery. Brain. Fried. But hopefully that's a long way off before we have to weigh up all the pros and cons.

However, I knew I was pinning a lot on this EUA. Very much viewed it as: if you're physically up in there then surely you can see what's happening?! Alas, nothing is simple and to the naked eye they couldn't find any polyps, fistulas, abscesses or fissures. She did however confirm that I have erythema and induration on my right hand side. Personally I'd almost prefer her to tell me I just had piles like a normal person who's been pregnant but then that would be too simple! Anywho. After my EAU the surgeon came back out to see me and explained what she'd managed to do. Or not, in this case. I'm going to need an urgent MRI to reassess for presence of sepsis, with the plan to go back into theatre as she didn't want to delve further when going in blind. 

There was talk previously of botox, applied to the internal sphincter (cue jokes about the most youthful bumhole) but actually that was a no-go from the get-go. The botox paralyses the muscle and the last thing I need is help to go to the toilet. Any more urgency and I would be in a position where I thought I needed the toilet toilet and it turns out I'd have already been. I'm not even 30 yet. Let me get to Nana age before I start shitting myself on the regular!

Next on the list of fixing me, is a SeHCAT scan that I have tomorrow and again next Wednesday to see if I have a bile salt malabsorption. This is a double edged sword for me as it'll either show that yes indeed I have something wrong. Not ideal, but at least we'd know what we're dealing with. Equally if it shows that I don't have bile salt malabsorption, then we're very much still wondering what is wrong with me.
In other news, I started seeing the hospital psychologist. She's been amazing. She's helped me figure out that actually I am pretty well equipped with the 'tools' I thought I needed, and that maybe - just maybe - my expectations for myself were a little too high and that sometimes it's ok to just be ok. Being able to shift my mindset ever so slightly and not give myself a hard time when ill has done me the world of good. I feel more like I can take on the challenges Crohn's throws at me, whilst also maintaining my mama skills I was worried I'd lose because I'm the 'poorly mum'.
Towards the end of our last session we briefly discussed body image. I'd like to delve into this in slightly more detail so will do so in another post - mainly because it's something I've been struggling with of late, as I don't know what I look like anymore. What is my body after pregnancy and Crohn's flares? What shape am I? Who knows?! I certainly don't.

X
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Thursday, 9 February 2017

Breast Foot Forward

As I sat in bed this morning, night light on, feeding my son, I took a moment to enjoy and appreciate the close bond that breastfeeding has given me and my little boy over the last three months.

I always said that I wanted to be able to breastfeed exclusively for the first two weeks of my child's life - which I did - and that if I could, I'd like to get to six months; even if that was through combination feeding. But tried to maintain a 'what will be, will be' type-vibe (so many opinions and pressures for feeding a baby, as I'm sure you're aware. Is my baby being fed? Yes. Great. As you were then). I've been combination feeding for a good while now and I wouldn't change the routine we've fallen into, by any means. However I always thought that when I chose to stop breastfeeding it would be just that: my choice.
Mother Pukka X Parent Apparel jumper with all my parenting feels
Good ol' Crohn's and the rules that go with the scans and sedation that I need means that my breastfeeding days might be numbered. If ever there was a sign that we go full bottle, it's being told that for 48hrs after my MRI and at least 48hrs after the sedation, I cannot breastfeed. Granted I could express to keep my supplies up and running, but it works out at almost a week long with the appointments being so close together. So maybe I take stock and prepare for the changeover.

I'm just finding it all a tad tricky, you see...everything a double-edged sword. As much as I love the morning feed when it's all quiet and just bab and I, both half asleep, it's probably for the best that any energy I do have, I keep for myself so I can be a relatively functioning human being and be there to provide whatever my son needs.
*Haven't actually done this, FYI*
I'm also incredibly nervous about the forthcoming investigations; the MRI I thought had been parked for the colonoscopy, is in fact going ahead as they called me yesterday. So I had my pre-assessment yesterday and my bloods done (gosh, so tired), I have my scan next week and the colonoscopy the week after. BUT WHAT ARE THEY GOING TO FIND?! I know I'm not well. For God's sake it hurts to have the little man even lean on my tummy. Standing is also generally becoming a bit uncomfortable; it's easier to walk hunched over like Quasimodo, but it's also not a look I recommend when trying to push your pram.

We'll see though. I've done this before. I've definitely been through worse with my Crohn's. Got to keep the long game in mind; experiencing the changes in my son each day and that come Autumn, I'd like to be able to walk down the aisle without looking like I'm from the Hunchback of Notre-Dame.

X
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Tuesday, 24 January 2017

I'm Pooped

If I've had an unintentional break from blogging, I always find it easier to pick it up again when it's Crohn's related. I don't know if that's because my Crohn's escapades always leave me wondering and subsequently that means I've got a lot on my brain that I need to let out. But either way. Here we are.

So as you are aware, I have Crohn's Disease and last year I also fell pregnant. As I mentioned many a time in my pregnancy posts, I considered myself super lucky to be able to enjoy every aspect of pregnancy like a 'normal' person with my Crohn's essentially putting itself in remission whilst I grew a human.

Well, said human is now out of me and 10 weeks old on Friday. And lo and behold we're back aboard the gastro train and it's like my Crohn's never left. (Wah).
Casually still waiting to be seen. Everyone else had left. Even the cafe had closed.
I had my catch up with my gastro consultant last week for what can essentially be described as a prelim to what looks to be an MOT for my postpartum body; all the bloods due to be taken and a small bowel and pelvic MRI in the diary. I think I spent the first month or so of motherhood pretending that I was perhaps more well than I actually was. No one should be shitting blood at the frequency I am and I think I tried to just get on with it for longer than I should have. And now I'm where I am now, which is scared to eat for fear of the impending bloodbath out my back nethers.

This in itself is a catch 22 as I'm still breastfeeding (technically combination feeding but the boobies are still required multiple times a day) and as any breastfeeding mother will know, it makes you oh so hungry. Any new parents will also know that looking after a new baby makes you rather tired (!) So this, coupled with the blood poos is all adding up to one mama who's so pale she's see-through and in need of a ruddy good lie down for about 8 days.

Don't get me wrong, I was never expecting my Crohn's to calm down when preg and I also wasn't expecting it to stay away once my bab was born. But if I was to say that I'm not sad about these latest developments, I'd be lying.

However I have to look at the bigger picture now I have a son and my stubbornness and my pride has to take a backseat when it comes to my health and looking after my baby boy. Would I rather stay breastfeeding but getting more poorly because I don't want to take certain medicines? Or do I take the medicines that would mean I'd have to stop breastfeeding, but can ultimately feel better? Obviously it's the latter. I just hope that the MRI isn't complete doom and that there's something we can do in the short-term so I can get back to being mama. Even if it's a mama who shits a lot.

And my poor bab having to get dragged on his Sleepyhead into the bathroom 10+ times a day. Hopefully he's far too young to be scarred by the experience. But everybody poos. his mama just does it more than your average.

X

PS: My hospital is in Westminster. The day of my appointment was also the day that they had to close and evacuate Westminster Bridge due to a WWII bomb discovery in the River Thames. Let's hope that's not an omen of any kind, hey.
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Tuesday, 15 November 2016

3 More Sleeps

Just 3 more days for my to fill my time as a pregnant woman, waddling around with a small human inside me.

I can't quite believe we're here already. Mentally I feel about 30 weeks pregnant - like I just haven't been pregnant long enough to be able to have a baby on Friday. Yet physically I am more than aware that it's almost that time.

As I mentioned in my last post, I have now compiled all my #bumpingalong photos and it's amazing to see the change in my body. Especially when there are particular photos I see and I remember thinking wowza my bump is huge when in reality it was probably week 18 and more of a swollen bloat-type bump compared to what it is now!

This is my final #bumpingalong at Week 38; non-maternity clothes (Topshop size 12 dress and a size 12 cardigan from Primark), paired with thick and wild pregnancy hair that I don't quite know what to do with.

And here is my journey from Week 14 to Week 38 with a few extra bump shots thrown in for good measure...


Admittedly the lack of consistency with square photos has really niggled at my OCD, but hey ho. The sentiment is the same when you compare the earlier photos to the ones from the third trimester. So big and round.

#bumpingalong aside, I have spent the last few days of my nesting getting my head around the forthcoming c-section, as I realised I haven't thought about this procedure the way I would have with my Crohn's ops. I'm not too concerned with the recovery part of the c-section because of having had previous abdominal operations, I'm pretty used to negotiating my way around with pain down that way (oh so glam). However saying that, I've never had to recover from a major op with a newborn. So will let you know how that goes!? It's when you let yourself think about what is actually being done though; cutting through the abdomen and uterus. But I just want what's best for baby; I am confident and happy with both the gastro team and midwives that have looked after me at my hospital. I'm in good hands and that's all I can ask for.

Whereas my Crohn's ops were a literal pain in the arse accompanied with hope that it'll calm down a wee bit and edge me to remission, at the end of this hospital visit we will have the most amazing little person in our arms; someone that we made and are ready to love unconditionally for the rest of our lives. This is why I am so excited for Friday - if not before - as it will be life changing in the most wonderful way and it's an adventure that we are more than ready to begin, as our own little family. Our own line on the family tree. A little unit of three ready to take on the world.

Now to make some more soups for the freezer. Mama's gotta eat.

X
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Tuesday, 1 November 2016

Baby Show-time

The other half was off work this last week and we were all sorts of busy with the final preparations for our small human; due to arrive in 16 days. I'm sorry - 16 days?! Time is not real life any more it seems...

Having been quiet on the blogging front it means there are a couple of #bumpingalongs to catch up on too.
Week 34 was at The Baby Show and I am a true ball-up-jumper vision. Standard maternity jeans from Topshop with a non-maternity Size L jumper from H&M.

At The Baby Show the man and I picked out our last (!) few - albeit key - items. We have opted for the iCandy Peach for the bab's travel system, collected our MaxiCosi Pebble Plus as well as a Nuna Leaf for their seat, plus a Baby Bjorn carrier. And some other bargain bits, because, Baby Show. Will let you know how they all work out once they're up and running as functional items with a real baby in them (still having moments of OH MY GOD WE'RE HAVING A BABY VERY SOON NOW)

Week 35 was also on location after our final hospital appointment with the midwife. Birth plan is finalised now, although we are aware that there is every possibility of it changing once labour and birth begins. Hopefully if everything goes as planned, there are some aspects to our bab's birth that are as 'normal' as can be in an elective c-section. But here I am wearing a variety of khaki items; maternity Topshop jeans, Size L t-shirt from H&M and my winter coat in a Size 8 from Topshop, also non-maternity. 'Baby on Board' badge and Big Ben an additional bonus.

And now to week 36 after an Autumnal walk and day date to the local brewery - keg in hand. Lemonade for me, of course. This outfit that I cobbled together is made up of my maternity jeans (sense the pattern of no other trousers fitting me anymore), a maternity shirt from Topshop with my non-maternity camo jacket and winter accessories. Comfort for the win still.

As it stands I am officially past 9 months pregnant now and as much as I am wanting baby to stay in until their 'due' date, I am beginning to understand the cliché phrases you see on the internet. This includes everything with regards to nesting - which FYI, I am still absolutely bossing - but also the memes of feeling like the last trimester of pregnancy lasts approximately 5426 days.


But hey. What's another 16 days until we're only counting down the hours?!

X
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Tuesday, 18 October 2016

Planning a Planned Arrival


Can't quite believe we're so close now! We had our 34 week appointment today with the c-section doctors, which naturally got me thinking about how you plan for a planned arrival...

I'm very much in the stage of pregnancy where I am completely freaking out, my dreams are stupidly vivid, I can't sleep for baby movement and all I can do is worry about what lies ahead. Will I be a good mum? Will baby be ok? What actually happens in a caesarean? I've read a lot recently that confirms that all of the above is normal and of course it's good to share my thoughts because it's not unusual to worry. It's a huge thing, after all! We've made a human being. I'm just going to have to wait and see, as I can't get myself all worked up over the unknown (a mantra I lived by with my Crohn's).

But my appointment today made me a tad nervous; it's the same as with my Crohn's ops in that you essentially consent to everything and wait and see what we find when they open you up.

We had confirmation today that due to previous abdo operations, my Gastro team will be in the theatre with the c-section team, myself and my other half. Hopefully when they make the incision, my bowel and scar tissue haven't caused too much of a problem in which case the Gastro team can bid farewell and then we can get baby out in a routine way. If however it obstructs what needs doing to access baby, they'll do their bit and then let the obstetricians take over. A little revolving door of surgeons around my nethers, if you will.

Like with any surgery there are risks; although there's been talk of a stoma and colostomy beforehand when I had my resection back in 2013, I didn't realise that it could be something that pops up in regards to when I deliver my baby. I guess in my mind I kept my bum issues separate from my front bum bits. There are of course risks associated with a routine c-section too, with everything from wound infection and bleeding to a hysterectomy. So yes, I'm a little worried. But as I used to say with my Crohn's ops, I was just another bottom to them - and this is just another caesarean. We have planned as much as we can and all we can do is hope that everything runs smoothly! In 30 days time.

Now I'm officially on maternity leave (post following shortly) I am just going to put all my energy into nesting and try not to let my worries get the better of me. And I'm also going to avoid reading some of the shite on the internet about how a c-section is the "easy way out" and that I'm "not giving birth" as I've had my baby "surgically removed".

I'll have to get back to you on that.

X
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Thursday, 29 September 2016

Pack 'Em Up

31 weeks and all antenatal classes complete! Labour, c-sections, recovery, breastfeeding, bathing, generally looking after a small human...we are informed.

Informed, yes. Totally ready? Not quite. But sure.

The antenatal classes have been really helpful though in taking all the bits we've read over the last 8 months and preparing us to put it all into practice.

And so onto this week, which is the week of the 'hospital bag'. Packing the hospital bags though make everything seem that bit more real. Throughout my pregnancy there have been moments when it's like OH. WE ARE ACTUALLY HAVING A BABY, but then you just carry on being pregnant and stuff. Like when we decided nursery colours, when we built the furniture, when the nursery was complete. When browsing online for buggies and car seats and slings and learning what a travel system is. Let alone hitting the physical preg milestones that take you aback as there's a real life human growing inside.

Looking online it seems that you need to take everything you've ever owned with you to the hospital. There are a few bits that are irrelevant as we're having a caesarean, but generally there is a fair bit of packing to do! It also advises that it's split so that mama has a bag, and then a bag for dad and baby in case I'm whisked away somewhere.
Pinterest browsing (again) for all the bits and bobs
The baby's movements have gone from me feeling ripples to acknowledging that yes, that is definitely a foot, or a tiny back and little bottom. Blows my mind! After all, it's under 50 days to go now.
The parents-to-be (and a celebratory ale)
Had my penultimate midwife appointment yesterday and it's always a relief hearing baby's heart beating away nice and strong - and it got me thinking about how far into pregnancy we are and how I still have no clue as to whether I'm carrying a girl or boy. Will I ever get a sense of what my baby is? Am I out of touch to have no idea? All other preg women I've spoken to have had an inkling of what they're carrying; which has either been proved correct when they've given birth, or they've found out at their 20wk scan and they're bang on. The hormones in pregnancy are a funny thing because you have these irrational moments where you let your mind wander and then suddenly you're just a big ol' pregnant weepy lump, sitting on your sofa talking away to your small human saying sorry you don't know what they are.

Well at least I know I'm definitely carrying a baby. Despite my dream the other night about giving birth to a kitten.

X
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Tuesday, 2 August 2016

Busy Bump

Considering it's only Tuesday I feel like this has been an incredibly busy week already! I think it must be because we're going on holiday on THURSDAY. Don't suppose I mentioned it at all?! BabyMoon time with bump and the other half?! I am sooooo excited. To relax and do nothing and that's fine because it's what you do on Summer holidays. My pale green skin is ready for some Vitamin D fo sho.

#bumpingalong this week at Week 23 (when did we suddenly get here?!) and as I said on the Instagram post, my look was very much suited to if I lived in a lamp; a metallic pyjama come genie medley. But it was comfortable so...T-shirt was a size 12 from River Island and the golden pantaloons are a size 14 from Topshop. Both non-maternity.
The disproportionate pinhead looking thing I've become
Saw the Crohn's antenatal team yesterday and we got to hear our bab's heartbeat, thumping away! Despite the odd kick at the doppler - it seems I'm carrying quite the hyperactive little tinker! But at least we know that all things check out as they should be for this stage in the pregnancy.
Keeping myself amused
They were also super pleased with how stable my Crohn's has been, so much so that they're happy for me to get in touch with them if anything flares up - but in the meantime they'll pass me back to the normal midwives from now on. Good news team!!

Also had my whooping cough injection this morning; entering the time frame now where each week in pregnancy pretty much equals some kind of injection or appointment. So got that today, then midwives again next week. Few more weeks and then it's the one for having a negative blood type. It's all go I tell you!

Took some time out over the weekend to start decorating our nursery... It's all so lovely it makes me want to do a happy tear - and we've only painted a ceiling white! We picked up the crib for our bedroom too, making it suddenly seem very very real. In around 15 weeks or so, the little wooden crib is going to have an even smaller human in there. That's ours. That we made. (The baby, not the crib. The crib was collected readily built)
DIY is code for dungarees
In case you didn't know, new little humans need a shit load of stuff for when they get here. We decided the best way to plan for this was to take a trip to our local pub and start on Babmin (Baby Admin). Eating a roast whilst discussing what adapter for the travel system we really needed, and swigging an OJ whilst working out how soon we need to invest in a breast pump. Glorious.
Local pubs: Making chores nicer since I said so
With regards to our upcoming BabyMoon though - I'm contemplating doing a lookbook for it? I'll be packing this evening and I think it would be a cool thing to do, to keep track of how I dress my bump whilst menopausally sweating in the Spanish heat. I sense a sartorial challenge ahead.

X
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Monday, 25 July 2016

Hidden Kicks

22 weeks today and as we're all aware, Mondays are never the best days of the week anyway. And today was certainly no different as I sat in my GP waiting to see the doctor after a lack of sleep for worrying about our baby.

As I mentioned a few weeks back, I've been feeling baby movement for a good while now - established timings and a pattern to keep an eye on. Even being able to see the moving through my clothes. But over the last few days, the movements seemed less often and when they did happen in the usual time slot, they just seemed so faint. I've been beside myself with worry the last day or two and it culminated in me being awake last night willing our baby to do a big movement so I knew all was fine.

You just feel useless. And then you worry that your body isn't working properly and that your baby isn't going to be all right. So when you pass a time frame where usually things would happen and there's nothing...it just made me so anxious. Especially as a first-time mum-to-be as I have absolutely zero experiences to base this all on, so naturally you look for reassurance where you can.

My doctor felt my bump this morning and said it was the right size and felt as it should for my gestation. And the main thing for me was that I also got to hear our baby's heartbeat. I can't describe the relief of knowing that baby was doing ok and things were actually as it should be.

Turns out that looking back over my scan notes, my placenta is positioned anterior high which means it's at the front of my uterus, as opposed to the back; when the placenta is at the front it can sometimes cushion the movement of the baby. So it seems likely that our hyperactive mini human went on a wander and moved to a place where even though they're moving all the time still, they've softened the blow of kicking me hard. They just put us through the mill emotionally instead of physically!

I spoke to my midwives this morning and they let me know that I'd done exactly the right thing in following it up with a medical professional. At the risk of sounding silly, I was all sorts of emotional, worrying and I just wanted to someone to tell me that I was being dramatic and it was fine - again searching for that reassurance.

My other half was so incredibly supportive with all this going on, too. Speaking as the pregnant one in our relationship, I've had to have moments to sit back and realise that he only knows how I'm feeling with baby based on what I share with him. He can't tell the difference in feeling of a flutter and more substantial kick. Let alone if those patterns of feeling have changed? So for him to be able to keep me as calm as possible when really he has no idea either, just makes me appreciate him even more.

What an anecdote to share when they're older: "Ahh, do you remember that time you played hide and seek with my placenta? You rascal, you."

But yes, at least now we know that our little one is actually doing wonderfully. They just made their mummy and daddy temporarily shit themselves.

X

PS: Kicks Count do a band you can use to keep track of periods of movement. Super helpful in these situations, especially if the baby brain has kicked in. And their website is full of such useful info as well.
My Kicks Count wristband on arrival

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Friday, 15 July 2016

In my 20s

Yes, in my age but also my baby weeks.

I am now 20 weeks and it's also the week of our scan where we get to see our baby again! I CAN'T WAIT TO SEE THE SMALL HUMAN. It's like the Christmas Eve feeling. Roll on this afternoon...

#bumpingalong this week was a maternity monochrome affair in leggings from asos (size 10), vest from New Look (size 12) and then a non-maternity kimono from H&M (size 10). I have broadened my maternity gear significantly now, so getting dressed every day isn't so much a guessing game of what still fits or not!
Ha ruddy ha
Some of my new maternity items include a slogan t-shirt (I don't know what's happened to me) and a second pair of maternity jeans. Now I embraced the overly elasticated waistband my first pair brought me - but this pair?! Something else entirely. No extra waistband...just a whole new section of material to hold your trousers up. Gone are the days of tucking anything in then!

Such a mum-to-be purchase
Flattering angle perhaps? My bump looks smaller...
Other half and I have also been taking polaroid photos every four weeks (supposed to be every week but #bumpingalong in clothes was more convenient) and we decided the other day to do a comparison of week 12 and week 20's bump. Obviously I am aware that my body has changed shape...but seeing the two photos side by side. Well...see for yourself...
I still have 18 weeks to grow. What's going to happen to my body?!
[Excuse the poor quality of the photo of the photos]
Will blog again once we're scanned because quite frankly I can't think straight when I'm this excited/nervous/anxious. WAH.

Baby baby baby.

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Wednesday, 6 July 2016

Half Time

So although Monday was my 19 weeks, it was officially my halfway point as I'm booked in for my c-section at 38 weeks. Where has the time gone?!

Also had the hospital on Monday to see the Crohn's midwife team - I explained to them that I'd been feeling a tad under the weather the previous week but wasn't able to tell them if it was Crohn's, pregnancy, or a combination of the two. Got my bloods done to check all my levels for general pregnancy but also IBD and they said they would be in touch if something came back off kilter.

Then there I am yesterday at my work Summer Festival with a missed call from the hospital. WAH. Luckily they called back; I was dreading it a bit as they said they'd only call if the results weren't fine...Turns out it wasn't my Crohn's flaring which was a massive relief - my inflammatory markers were hardly noteworthy. It's my iron.

I've always been borderline anaemic for as long as I can remember, but on the right side of normal, still. It seems that now my iron levels have dropped quite a lot since being preggers and my hemoglobin levels are rather abnormal. Still no giving blood for me then! Oopsy daisy. I'm putting this decrease in iron down to essentially being a vegetarian because meat is still making me feel poorly. Looks like I'll have to go on prescription iron for a while to make sure that I'm not a temporary narcoleptic whilst growing the bab and to also make sure I eat more spinach like Popeye for an extra boost. Just not looking forward to the side effects of the iron tablets (oh my Crohnie bowels).

But enough about that! Onto the nice things! Here's me #bumpingalong for week 19 in a maternity purchase from asos in a size 10, plus my new 'mum' barnet. Look at my bump...it's getting so big carrying my mango-sized baby. Ahh.


This baby is so active though! I find it all so amazing and surprising as I am only 19 weeks - I feel lucky to be experiencing such movement already.

We were starting the foundations of nesting for after our scan next week and there was one moment this weekend where our baby was going nuts! I didn't even have to get baby daddy's attention as it was so noticeable through my clothes. Our baby is definitely in a routine now, so I'm aware of when to keep an eye out for the dancing and can move my Kicks Count band around another number.

Am hoping to capture the moving on video and if I do I will share on here. It's magical/like something out of 'Alien'.

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Sunday, 5 June 2016

Dietician Time

Got the hospital tomorrow morning to see my gastro dietician. It's a scheduled appointment from the end of last year for Crohn's, but has actually come at the perfect time in my pregnancy. This is because I want to put my mind at rest and make sure that I would be able to put on the required weight for baby and me.

I say this based on how my body can drop weight so quickly when flaring and generally how hard it can be to put weight on with Crohn's (unless you're on steroids - hello swollen moon). Over the last few weeks my weight generally hasn't changed. Like to the decimal hasn't changed, at times. But now it's creeping in the right direction which is good!

As I mentioned in a previous post, my Crohn's is as calm as it's been in years. But being pregnant has played havoc with my eating; I've completely gone off meat, and in the first trimester I was feeling nauseous all the time so eating was tricky. Despite taking the pregnancy supplements, I want to know that I am eating all the right things for a good healthy development of the little human.

Being in the glorious second trimester I have my appetite back now so I'm excited to see what recipes I can come up with that tick all the nutritional boxes for the two of us (!) based on my catch up tomorrow with my gastro dietician.

I'm making a conscious effort to eat well with these new culinary cravings and it's given me an opportunity to explore the vegetarian world a little bit - my favourite being a vegetarian chilli con carne with all the beans that I rustled up. So good!

Will post a few of my favourite recipes for any of you foodies out there as I get more adventurous with the ingredients.

But as it stands, bring me all the food. I'm ready.

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Monday, 23 May 2016

Fit to Burst

I've started writing a couple of posts over the last week or so. And then stopping. And then revisiting. And never finishing them. This was one of them for a good while.

It's because I've been BURSTING WITH NEWS that I couldn't talk about. Not just yet. I had so much running around in my head that I needed to write down all my thoughts...But now I can talk freely about the most exciting thing that's happened to me. That's happening to me. To us, as a couple.

The fiancé and I are expecting a mini person.

We are having a baby!

Even typing out that sentence is the most amazing thing. We've made a tiny person; a miniature human growing inside me and that is bloody incredible.

#BumpWatch begins as I can finally be loud and proud at work. BABY.

I'm aware that it is Biology 101, but the whole science of how a person is made and the things I've learnt even in these first 13 weeks blows my mind. It's fascinating. And it's just the start of the journey into parenthood for us both. It's also another reason why I wanted to start blogging again really! I'm keen to share my experiences with pregnancy, but also pregnancy with Crohn's.

For someone who can talk the hind legs off a donkey and hold a conversation with myself, not being able to talk openly about ALL THE EXCITING THINGS I'M FEELING AND THE CHANGES THAT ARE GOING ON has been torture. But we're in the safe zone now. We've got a few midwife appointments in the bag and we've had our first scan. It's real life people. It's happening.

We've shared the news now with all our family and friends and the response has been overwhelming in the most loveliest of ways. So much love. It really is astounding and makes you realise how many special people you have in your life and how lucky you are to have them.

I just feel like I'm floating with joy. Christ. Will you listen to me?! All hormonal and emotional and rambling about love. I'm such a happy mess right now.

I am pregnant.

And we are completely and utterly over the moon!

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Wednesday, 4 May 2016

It's only been 2 years

And my hasn't it flown by?!

A brief update wouldn't go amiss, otherwise you're probably wondering why do I even need to start reading this blog? Who even is this rambling person that just pops up online after a two year hiatus?

Well that person be me, my friend. Harriet, off of Harriet's Got Crohn's that has now decided to be called Hattie online. Sure. Let me try it out. See if it fits. And so far, I'm quite the fan.

It would be easy to say I don't know where to begin, but then that doesn't really help much with an 'update' per se. So maybe it's best I do a quick run through on the Crohn's to get the medical bit out the way and then we can talk about all the fun things that have happened and are happening!

So...

Can't remember what operation number I was on when I last blogged, but I've now had 14. Most recent being another pain in the ass one in December 2015. Care still under the Gastro team at Guys & St Thomas' which is hands down one of the best hospitals I have ever had the experience of being looked after by. They couldn't be more aware of what's going on with me individually and when I'm there I don't feel like just another hospital number. I feel like a person.

To be honest, that's probably why I haven't felt the need to blog for such a long time as - although I haven't been well - I've had a much better support system from the people qualified to help me when I'm ill. And it took me moving hospitals countless times to realise that it shouldn't be an unusual feeling; to feel like you're being looked after when you need it, by the professionals who are there to help you. So yes. Still very much team Guys & St Thomas'.

Meds-wise, I still struggle with the whole Humira injections and have been told off many a time for bad adherence. So we're currently on hold with that whilst they see if Azathioprine can do the job on its own for a while. If it can, ace! No more spring-loaded pens into the abs of steel (ha! Who am I kidding?! No steel here) Will make sure I keep you in the loop with that one. Meds, not my six pack development as that is totally not a thing.

Talking all things body...you may recall a post or 9 about the weight gain from all the medicines I've had over the years. Well the heaviest I got to was 75kg. Now at only 160cm it doesn't take a genius to work out that I was past the point of plump. Then the fickle finger of fate stepped in and through another flare up I went back down to my natural weight of 53kg. Only problem was that it was in a period of three months - so all eyes on me from a medicinal point of view. Doctors everywhere. All the tests. But since coming off the multitude of meds my weight has plateaued and we're doing ok!

No remission officially as of yet, but hey, it's already been 7 years since diagnosis and no remission. What's another 7 or so!?

I think that covers it from a health point of view. I'm sure if it hasn't I'll be blogging about it now I have definitely got the blogging bug back whilst typing this *excitable scream*

Hmm. Now what else has happened since I've blogged last. Oh I don't know. OH YEAH. I GOT ENGAGED.

Officially a grown up. A Mrs-to-be.

All very exciting. All very romantic. Many things to plan. Many things to think about. So many wonderful things to look forward to over the next year.

And that's where the glamour of Crohn's brings you straight back down to earth; when you look at wedding dresses online and consider the ease in which you can go to the toilet toilet. What a bride I'll be.

But now you'll all be there as part of the journey, too.

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Tuesday, 15 July 2014

Still flaring?

And my level of frustration towards my Crohn's has skyrocketed this week!

I have the first of two hen doos on the weekend, followed by the second next weekend...then my holiday on 11th August...and then the two weddings at the end of the month. Not to mention my full time job.

I certainly do not need to be tired, vomiting, shitting out water and crying. Nope. Nahhh. No. Definitely not.

However, I do have my gastro consultant appointment on Thursday of this week. I'm not expecting anything amazing to come out of it, but just having them prod my stomach and realise how hard it's gone - in a weird way makes me feel better as it would confirm that I'm flaring.

I know it sounds ridiculous as I'm 5 years into my IBD journey - but sometimes I find it hard to determine if I'm officially in a flare up, or just really struggling with the day-to-day symptoms of Crohn's; the fatigue, the loose stools, etc.

I'm also curious as to what people think about Azathioprine? I have a very up and down relationship with it and I'm considering stopping it after I've spoken to my consultant about other options.

Either way, hopefully they'll be able to patch me up for the Summer!

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Thursday, 5 June 2014

Crazy Week

Phew! I don't even know where to start with all the crazy goings on over the last week!?

Best to go in CROHNological order I guess... with photos galore!

BUPA London 10k Time

As you all know, Jamie and I had our 10k run on Sunday 25th May. And we did it! And even better, we've raised (currently) £663!! Way over our initial £500 target. So to celebrate we took some over the top selfies and had a cocktail in the sunshine. My evident athleticism shining through haha.

The JustGiving page is kept open until mid August, so it's not too late to make a cheeky donation! Click the widget on the side of my blog (not on mobile) or you can text HSJD50 £3 to 70070.

Thanks again for all your support!!






Birthday Fun!

And so the run was done, it was a Bank Holiday 4 day week and it was the week of my birthday. Amazing times to be had!

I got treated to a scrumptious meal made by the other half and got to see Wicked. Oh my, it was indeed wicked. Wickedly awesome. Can't believe it took me so long to see it!! If you haven't, go. Go see the show.

Now I just need to update my About Harriet section to say I'm 26 now. Not 25. Late twenties (oooh)







And so to this week...

Got to love the unpredictability of Crohn's, eh? I had a day off sick on Tuesday and broke down at work yesterday - so smooth - and now working from home.

Did I forget to mention that I'd been bleeding since the day before the run?! Yes. I had. When I type it, it feels like I am talking about menstruation mmm yeah, but hell no. It was the return of the shit yourself toilet trips, but in a non-literal way. No wonder I was so ruddy tired all the time.

Got my bloods done on Tuesday so awaiting the results from that; typically they come back normal, despite me knowing my body well enough to know things aren't normal.

And although totally the wrong thing to do by ignoring it for a few days, at least I got to enjoy a week of achievement and birthday fun!

Onwards and upwards IBDers!!

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Friday, 11 April 2014

New person?

Almost feeling back to normal. If normal was a thing.


All the symptoms that caused me to feel like a bag of broken marbles have disappeared... now it's just a case of powering through the remaining weeks of Pred! Also have the dietician on 14th and then catch up with my consultant in about a month to see how things are.

I'm not a fan of steroids as I feel it gives a false sense of security; it giveth with one hand and taketh away with the other *puts away rose tinted glasses* However, if it's patching bits up that don't make sense - even if it is only for a number of weeks - then that's a hell of a lot better than continually feeling AWFUL. And at least I'm back at work now!

And I've also joined a gym! I know. I am basically a new person. Went to Zumba Step on Wednesday...almost died. But if you pardon the pun, I am one step closer to have an ass like Shakira Shakiraaaaaa. Might as well try and turn the rapid weight gain into something that resembles a bootay instead of a Teletubby.

But yes, as I've been in this relatively normal state for a week or so now, it's let me plan and do some wonderful things! 'Twas the other half's birthday last week which meant we could have a countryside escape for the weekend. Visited a National Trust village called Lacock (oh matron) and relaxed in a converted cottage in Devizes. Simply scrumptious. Makes me want to go all Cath Kidston, put on my wellingtons, bake a pie and leave it on the window sill of my thatched cottage.
 










And now to this weekend where I will be exploring Winchester with some old girlfriends. Many giggles to be had with these two lovelies... 



And I can't bloody wait.

Catch up soon amigos!

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