Tuesday 15 July 2014

Still flaring?

And my level of frustration towards my Crohn's has skyrocketed this week!

I have the first of two hen doos on the weekend, followed by the second next weekend...then my holiday on 11th August...and then the two weddings at the end of the month. Not to mention my full time job.

I certainly do not need to be tired, vomiting, shitting out water and crying. Nope. Nahhh. No. Definitely not.

However, I do have my gastro consultant appointment on Thursday of this week. I'm not expecting anything amazing to come out of it, but just having them prod my stomach and realise how hard it's gone - in a weird way makes me feel better as it would confirm that I'm flaring.

I know it sounds ridiculous as I'm 5 years into my IBD journey - but sometimes I find it hard to determine if I'm officially in a flare up, or just really struggling with the day-to-day symptoms of Crohn's; the fatigue, the loose stools, etc.

I'm also curious as to what people think about Azathioprine? I have a very up and down relationship with it and I'm considering stopping it after I've spoken to my consultant about other options.

Either way, hopefully they'll be able to patch me up for the Summer!


Friday 4 July 2014

Nil by Mouth

Since Saturday I have been struggling to eat anything - FODMAP foods and all. And anything other than water is making me feel poorly too. It's the nausea I can't handle. And the pain. Oh the pain! Like my stomach is so swollen it feels like it could burst.

I put my food problems out there on Facebook and some of the responses I got with regards to what to eat were interesting! From applesauce to rice cakes, to liquid diets, shakes and fasting.

Today is a lot better than previous days though; have managed to eat a banana and not throw up or run to the bathroom. It's the simple things, eh?!

Yesterday I thought it was a good idea to try and go back to work (so bored at home - there's only so much daytime TV you can watch before you're brain dead) But alas, I still looked like I'd been punched right in the face and cried at the drop of a hat. So off back home I went where I then slept alllll day. And then vommed. And woke up countless times in the night to go to la toilette. But there we are.

I know I've said it before, but it's the ultimate frustration that comes with flare ups. They just inconvenience everything. It's giving me major FOMO [Fear of Missing Out, FYI ha] I have so many things coming up that I'm looking forward to and all I want is to know that I can have a proper Summer. Ideally with minimal Crohn's issues. Not asking for much!!

Got an appointment with my consultant on 17th so will obviously fill them in on what's been going on and we take it from there...

Enjoy the sunshine!


Tuesday 1 July 2014

First Vlog

Well this was certainly an experience! Hair is all over the place and realised how often I say 'umm' AND there seems to be a low flying aircraft in the background. But hey ho...here's my first vlog!

Would love to know what you think!


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