Half Marathon Plodder

When I started blogging, someone once asked me if I minded that my main topic was my Crohn's - I guess meant in a way of did I want to write more about me, without the obvious affiliation to my disease. And I didn't really know how to answer it?

The older I've got the more I've realised that it is part of me; whether I like it or not it has an effect on all areas of my life, both good and bad. And the fact of the matter is, I am my Crohn's and my Crohn's is me. Of course there are days when I begrudge the seeming unfairness of it all - especially when I was younger and I was spending more time in hospital waiting rooms than I was at university. And in more recent times realising I really don't have a choice at all in how my body behaves. But my body has also fascinated me by pretty much pretending Crohn's is gone when I've been pregnant with my boys, and it's allowed me to go on and have two very healthy, wonderful pregnancies. Swings and roundabouts, etc.

I had my post-op colonscopy on the weekend and (surprise, surprise), there's still signs of active disease which means upping my dose and frequency of my biologic meds. So yes, it can still get me down. I'm doing as I'm told, I'm taking my medicine... I'm doing all the things the doctors advise AND YET we don't ever really seem to get ahead of the disease.

But despite all of the monotony of a chronic illness and pain, I got my Crohnsy arse in gear and I managed to complete my pledged half marathon distance for Crohn's & Colitis UK. Well done me. 

I aimed to do 7 miles walking as I was waaaaaay below on my iron - normal healthy person optimum iron ~40, I came in with a strong 4. So I packed my backpack and off I went into the wilderness of the westcountry with only my headphones and the cows to keep me company. My main concern was literally shitting in the woods, but alas, no Paula Radcliffe this time round. I found that the walking itself wasn't too bad and I think because of how crap last year was, there was definitely that drive to plod on and keep going. To see donations coming in as I walked was so encouraging (shed a tear by some sheep in a field because I'm a mess?) But it really did spur me on. So much so, that my aim of 7 miles came and went and lo and behold these little tired legs completed the half marathon in one stint. 

I really am proud of myself because I really didn't think I'd manage it. And I did my 13.21 miles in 4hr 23m. Because of my shameless pride I have no qualms in saying the Walk It fundraising campaign ends on 30 June so this is my final call to anyone who would like to donate to Crohn's & Colitis UK.

https://www.mywalkit.org.uk/fundraising/harriets-walking 

I'm going to try and put some videos up of me rambling whilst I rambled. But just want to say a massive thanks to everyone that has donated so far. It means so much to me, as I imagine this is a charity that I will need to lean on many more times in the future.

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All the Things

Not really sure how to start these posts now, when it’s more of a current health update, as opposed to the woes of yesteryear (NB: 2020). But if I’m going to ramble on about certain IBD situs, then I guess I might as well keep you informed with the now...

Had my appointment with Gastro on Monday. Essentially my bloods say I’m anaemic again and I need another iron infusion; they want to get up my arse with another colonoscopy to assess post-op if my 12 weekly home injections of biologic meds needs increasing to every 8 weeks instead; to try not to lift my sons due to the abdominal hernias and then could I please shit in a pot for a stool sample (my words, not theirs). All this before pending surgery, if covid deadlines allow. So that’s a barrel of laughs ahead!

And whilst I’m dreading any letter that arrives with a hospital postmark in case it’s my kidney operation date, I had one arrive this week for the eye hospital because *spoiler alert* apparently Crohn’s can also affect your eyeballs and get inflamed there too. Specsavers weren’t too sure what was going on in my left eye and thought it best I got referred to the eye specialists. Lovely time.

I mean, I’d be lying if I said I’m ok with the volume of things that seem to be happening in one go? So as a distraction I’m going to try and complete my half marathon walk this coming week. Ideally in one day, but, you know, I’m a little bit broken inside ha. Plus it’s also very warm at the moment - don’t want to be chafing as I stride up a hill with a big stick.

Will let you know when I’ve walked my walk and whether I can stand up by the end of it. For now though, I plan on sitting in my garden in the sunshine and listen to my children play. Make the most of the fleeting British summertime.

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My JustGiving page 

Walk It 2021

I have full imposter syndrome about doing sports, but here we are. It's June. The month I committed to doing a half marathon's distance for Crohn's and Colitis UK. 

As I touched upon in my last post, 2020 was a tough year for everyone what with Covid19 and the uncertainty that brought in these unprecedented times. Yet from a personal, Crohn's point of view, it was my toughest year to date. Throw in a global pandemic and WHAT A RIDE. Honestly? When I had my flare up in March, I thought I was going to die and my body had had enough. I've never felt so vulnerable. When it happened again in September I just didn't know what was going on in my insides and what the plan was - if there even was one.

Yes, ok I've had all the operations and procedures when I've flared beforehand and generally I've been fine (?) with that. But I have never vomited *actual* shit before; and all at a time when I wasn't even sure if my husband was allowed in hospital with me when I needed him the most. 

But hey, now it's quite the anecdote and conversation starter at least.

That week in March 2020 was a whirlwind...we had our boys' christenings and the next day at 2am I was blue lighted into hospital with the whole shit shenanigans. At one point prior to ringing 999, I was breastfeeding my baby whilst being sick in a bowl. The rest is a bit of a blur - but to summarise, once in hospital and all the pain relief, I had a CT scan and the strongest IV antibiotic steroids to try and calm down the inflammation in my small intestine, as it was essentially causing a faux blockage. Persevered with a week of meds and the bloods and tests showed things had calmed so off I went home.

Fast forward to September and I was optimistically getting my hair coloured - even though I felt beyond rough (lockdown locks had gone wild, plus I thought the pamper might make me feel better). However, I ended up being sick in her bin in between rinsing the colour off and knew things weren't going to be ok. I rang the other half and said to get his mum round to watch the kids as this was looking to be another 999 situ. Even though my hairdresser was incredible in that situation, I could imagine that the professional part of her must have been like 'Jesus Christ, that bleach needs toner. It's so brassy.'  We simply paused on the 'do and I promised I'd be back to finish it off soon. LITTLE DID I KNOW. 

***

It seems strange writing about September in such a pragmatic way, as I look back at the Instagram posts from that time and I just wasn't ok?? Like I said, I've had like nearly 20 operations but this one hit different: that the inflammation from March never really went away and was now an actual blockage. The urgency of an op, the seriousness of it. The fact that it's not just me; it's my husband and two boys that are relying on me to pull through this flare. 

Because of covid, there were the obvious and expected delays with things which inevitably allows thinking time. When you're on your own in a hospital bed, the mind can really run wild. But I got my op; resection in the small and large intestine, with an incision down my stomach and a new belly button for good measure. The optimism was creeping back in, and now it was all focus on the recovery. That was until I got a temperature, got incredibly distended and couldn't pass wind for days. They say after that type of surgery that your bowels forget what their job is, so to try walking around and what not, trying to encourage bowel movement. Never have I willed on a fart as much as I did during this time. Any sort of humility and decorum had long gone.

The fart never came.

Instead, I got another NG tube and was having litres of dark green fluid syringed out of my stomach. I had another CT scan because they thought I had a leak from where the new bits of intestines were joined together. Fortunately I did not have a leak - I guess things were just going to take their time and test me physically and mentally as we went on. But yeah sure. Was in hospital for a little while and then once I'd done the enigmatic poo we'd all been waiting for, it was time to head home again and start the next stage of recovery.

Recovery took longer than I'd thought and hoped it would, but I also knew I couldn't push myself too much. To go slow, rest, look after myself. And after six weeks or so I was miles off the state I was in before my operation and I felt able to look forward to the good bits.

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Side note - Probably worth mentioning here that a kidney consultant rang in Autumn last year to discuss the CT scans I'd had when an inpatient in March. Turns out I have a couple of kidney stones knocking around. After many a phone appointment and consultations in hospital since, I'm now actually waiting on another operation in the next few weeks. 

I want to do my walk before I'm back in another post-op recovery period. If you'd like to help my fundraising, the link is below...

Harriet's Walking - Walk It 2021

Thank you in advance, you wonderful people.

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Woah to 2

WE ARE HAVING ANOTHER BABY *klaxon*

We're going to be a family of 4. Two children. A second spud due for arrival in September. Woah.

I still find it quite mind blowing that my husband and I coped (?!) with the secrecy of those early pregnancy days, whilst our first born was having the worst health experiences of his little life so far. Such a dramatic overlap.

The six weeks of knowing there's a new human growing, but weren't yet scanned and in the 'safe zone', all the while being tested in ways that you hope to never be tested as a parent... I found that really tough. My emotions went through the ringer; wanting to do everything for my son yet trying to stay calm for the unborn. I wanted to shout from the rooftops that we were expecting another child, so please bear with me if I seem wildly overemotional. And yes I would like some gas and air in the ambulance, thank you please. However, we had to make sure our son was all right and another few weeks of sshing about the bab wouldn't hurt. Now we've been scanned. We've seen the tiny spud. My rooftop shouting can really take off.

We actually found out we were expecting the day before our son's first seizure episode. Talk about highs and lows in a condensed space of time! But due to terrible period maths on my part, I had no idea how pregnant I was. I did guessing based on whether I took multiple tampons to my Christmas do - even with that, I wasn't sure if that meant I was nearly finished or had just come on? So in short. No. I don't know when my last period was. I just knew that the four different tests all suggested that there wasn't going to be another period anytime soon. All sticks pointed to POSITIVE.

It was all very surreal because that technically meant that we were going to be parents of two. Jesus. The toddler terrible twos are very much a thing we're in the middle of - so what happens when you have a toddler and a newborn?! I once heard the phrase that when it comes to multiple children, two is a zoo. And there we were... positively pregnant with a second. Zoo, here we come.

Did the relevant admin with the midwife and got booked in for our dating scan. We were so close to being able to tell people (as long as all was well) and I could sense the anticipation of no longer having to dress in a sack and walk like Quasi Modo to hide the bump. Yet as I mentioned with my bad period maths, our scan meant we were actually only 10 weeks pregnant. So not able to officially announce the second bab - and equally not pregnant enough to have the first set of screenings, either. This also meant another due date after measuring the little thing. Back in two and a bit weeks to do the proper dating scan then!

The longest two weeks of all time, yet there we sat, looking at the new bean on the screen. I cried. I've felt so emotional this whole pregnancy - not sure if it's because of the timings/circumstances around when we found out? Or that my awareness has heightened with regards to pregnancy not going the way it's supposed to. It's most likely a combination of all, but at least I had the take home from that appointment that our new bean was doing well. Everything looked as it should. We also had another due date now they could actually measure crown to rump...it's a late September baby! (Minus a week or so due to elective c-section so my arse doesn't fall out in pushing, thank you Crohn's). So yes, now we can tell friends and family the good news. I can be preg and proud.

I'm so pleased that I took the time to blog every week when pregnant beforehand - and despite my slack writing since then - I have decided to do it again with this bab. I'm currently 15+6, my turn of the weeks being on a Wednesday. I want to document all the iddy biddy feelings and share how different (or not) they are from the first time round. And I'm going to try and be a trendy mum-to-be with an outfit post each week too. Because my word, this bab has popped right out. Muscle memory, or whatever it is... I don't know how I'm going to dress this speedy bump. Unitards? Tents? I'll be sure to share the weekly outcomes regardless.

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10 Year Challenge

You may have been aware of the latest internet craze called the #10yearchallenge? Essentially a then and now (or at least a 'then') from 2009. Why someone felt 2019 was the year to look back from is beyond me? Surely 2020 would have been better, as a multiple of 10. Or maybe I'm just thinking too much about this.

Anyway. I hopped on the bandwagon on this drizzly Wednesday, after many a day of scrolling through various social media platforms seeing people's throwback to a decade ago. Glow ups, etc. Lovely time. And I put up a picture of me from ten years ago.

But it wasn't until I started looking through my own photos properly from 2009 that it dawned on me: I've been having my own 10 year challenge. January 2009 was the month I got diagnosed with Crohn's. 2009 was the year that what I thought I knew of my health was all change for forever more. A whole decade of diagnosed IBD.

I pretty much spent all of my 20s - in one way or another - poorly. In hospital. Lying down because it hurt to get up. Sleeping on a narcoleptic level. Fat. Thin. Steroid moonface. Taking medication. Injecting medication. Having an IV for medication. Keyhole surgery. Robot surgery. Slice me open surgery. Hospital admissions. Inpatient. Outpatient. Too many perianal abscesses to mention. Too many visits to a toilet. Too many medical professionals looking up my asshole.

In January 2009 I was presented with a challenge I didn't know I'd have to face; a challenge that had mini-challenges en route. But Jesus Christ it has absolutely been the making of me.

And here we are now! Yes OK, I'm like 17 operations in (who's counting?!) But I am in my 30s. Married. Mama. Now a homeowner (what a palaver that was - will pick up that topic of convo another time). Back working on a magazine portfolio that I love so much. Things are actually really good! And I'm so happy that everything finally seems to be falling into place for me and mine.

Sure, I still have to do an assessment of where all toilets are if I'm out for a family walk. Or there might be times where Mummy just needs to have a quick powernap before we watch Teenage Mutant Ninja Turtles for the 6th time that day. There might also be times - like now - when I'm sitting on a train and I catch my reflection in the window and it's apparent that my tired bags have developed their own bags. Eye bags on eye bags. It's quite a look and I don't think any form of makeup layering is going to help this face out.

I don't mind you see, because besides being rather tired, I am content. I have spent three days in London doing meetings and what not for work and it brings me joy. But not as much joy as stepping off the train to be greeted by my husband and son will bring me. My boys. My little team.

To be honest...I'm not sure where this blog post is going. Am I waffling? I just knew that I had to take a moment to acknowledge the ol' decade long anniversary of knowing my insides were broken. And that however shit things might have seemed at times, it works itself out. Ish*

Here's to the next ten years.

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*I mean nothing is a guarantee. But all in all, I guess if you can find the positives where possible and then just ensure to have a ruddy good time?

PS: I'm running out of sentences to apologise for my MIA blogging. I do get annoyed with myself that it's so infrequent. But I guess it's going to have to be as and when, probably the best way forward. So until next time...(whenever that is!)

Who Am I?

It seems my blogging hiatuses are getting wildly out of hand. Over seven months this time. Maybe you're wondering who I even am? It's been so long!

I suppose my main reason for the break was to focus on getting better from the crazy flare I had over Winter, and to try and get back to 'normal' with regards to routine in both work and home. And I got there! Ish. I mean, I've been back at work properly since February and am also now in the depths of trying to buy a house which can go on to become my home.

Whenever I have a break from writing it's always quite a challenge for me to get back on that hypothetical bike; there's always that moment of WHAT IF NOBODY WANTS TO READ THIS ANYMORE?! Yet I've decided that actually, that's fine. Because I know I find writing therapeutic. I know I enjoy sharing my thoughts.

So for anyone that is reading/cares, brief summary of (essentially) 2018 thus far:

• Back working full time
• Been a wife for nearly eleven months
• Off all meds to try and reset my body/see what state it's left in
• Turned 30
• Continued to watch my son become the funniest little human 
• Trying to buy a house

I don't know if it's because I've had a milestone birthday?? But I've done a lot of thinking this year. And more recently in particular, I've done a lot of thinking about what direction I want my writing to go.

I think I've mentioned it before, in that this obviously began as a way for me to talk about my Crohn's and was started at a time where I was due the largest operation I'd had. I was shit scared. I didn't know what lay ahead, but I was already aware of the duff hand I'd been dealt re my health. Time passed, I blogged about the arse situations my body had thrown at me - and I'd like to think that on the whole I coped (!) with it all rather well. Then I had a reassessment of here blog and decided Hattie, etc. was the way forward. I was more than my Crohn's. And I wanted this platform to be a representation of that. The natural progression was to then write about being preg - which honestly, I look back at all my posts from when I was that first-time mama-to-be and I am so so glad I wrote as often as I did. Things that for the life of me, I cannot remember happening, yet I have all my thoughts and feelings sitting there in this hub to relive.

That then leads me to now, though. Not pregnant. Still very much an active Crohn's patient. Where do I go from here? What do I write about? What do I have to say?

There are things that have happened that quite frankly I would have loved to have written about so openly, but as with anything...time and a place...and often it's not the right time. Or necessarily the right place. It can be a challenge to work through life's hurdles anyway, let alone when you get bad news; or terribly sad news; or news that you would just rather have on another day when you feel like you can deal with it better.

One thing I've learnt as I've got older (and also since I've become a mother), is that there are a lot of things that I have no control over - try as I might - but it's how I deal with situations, which will help shape me as a person. Who I am as a mum. Who I am at work. Who I am as an individual. Who I am as a wife. Who I am within my family. Who I am as a friend.

And maybe that's what I write about now? Who I am. Who actually am I?

I'm not promising any fantastic content that will provide you with endless laughs or equally all the tears. But as I delve deeper into my 30s I plan on writing as many of my experiences as I go: family holidays, being a mother to a glorious little boy, tales of being a wife, buying a family home and the subsequent interior design (FINALLY. Time to release my inner Laurence Llewelyn-Bowen *puts on a pussybow blouse with a fluted sleeve*) And maybe also for that one day in the future when I'm a mama-to-be again. Perhaps even some of my outfits, whilst I'm at it.

Because that's who I am. I am all of those things. I am like a human dodecahedron and I want to write all about it.

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Dancing Humbug

Ass Issues

Needless to say it's certainly been a little while! And even though it seems wildly out of context, Merry Christmas and a Happy New Year to all. So now to 2018.

Brief update on what's been happening: got discharged from hospital after my stay in November (don't think I'd cope if I was still there now) and I had everything crossed for a lovely normal Christmas period. Wanted to start 2018 with a 'new year, new me' attitude and all that shite...Dyed my hair blonde. Strong start. 

From a general Crohn's point of view though, we made it to January in a relatively normal state - no more hospital admissions, and I will take the small wins as and where I can! Also had both an outpatient appointment and a catch up pre-Christmas with my consultant. I mean it wasn't great news?! Essentially, your inflammatory markers should be around 50 and mine was coming in at 507. Whoopsy. Have a vitamin D deficiency too, but as far as I'm concerned, if ever there was an excuse to go ahead and get the honeymoon booked it was my body medically crying out for a bit of sunshine. And I finally got my iron infusion - second time lucky as the first time I had a temperature after the flu jab. Swings, roundabouts, etc. Was also still on the waiting list for the EUA from September - and herein lay the problem; THAT'S A VERY LONG TIME TO HAVE A POORLY BOTTOM.

But as of yesterday, I got my long-awaited EUA. All up in my personal space trying to figure out what exactly is happening with my ass. The surgeon came to see me beforehand as they do, and tried to explain to me what was going to happen. As with any type of IBD surgery, it's very much a case of consent to almost everything and then see what you wake up with. I know this. Yesterday was my 16th time in theatre. It's just a bit tough when they essentially say they don't know what's wrong with you.

I had an MRI in November and it showed that there was unusual activity in my pelvis. So then I was sent for the flexible sigmoidoscopy but they couldn't find anything? Yesterday's surgeon spoke to the people who carried out the MRI and the Flexi to literally try and get to the bottom of it. But to no avail, it seemed. The surgeon also mentioned that maybe the only way we can stop my bottom being such a pain, is to stop using it all together. That's an intimidating thought as having a permanent bag in this scenario would be more of a choice, rather than a necessity from emergency surgery. Brain. Fried. But hopefully that's a long way off before we have to weigh up all the pros and cons.

However, I knew I was pinning a lot on this EUA. Very much viewed it as: if you're physically up in there then surely you can see what's happening?! Alas, nothing is simple and to the naked eye they couldn't find any polyps, fistulas, abscesses or fissures. She did however confirm that I have erythema and induration on my right hand side. Personally I'd almost prefer her to tell me I just had piles like a normal person who's been pregnant but then that would be too simple! Anywho. After my EAU the surgeon came back out to see me and explained what she'd managed to do. Or not, in this case. I'm going to need an urgent MRI to reassess for presence of sepsis, with the plan to go back into theatre as she didn't want to delve further when going in blind. 

There was talk previously of botox, applied to the internal sphincter (cue jokes about the most youthful bumhole) but actually that was a no-go from the get-go. The botox paralyses the muscle and the last thing I need is help to go to the toilet. Any more urgency and I would be in a position where I thought I needed the toilet toilet and it turns out I'd have already been. I'm not even 30 yet. Let me get to Nana age before I start shitting myself on the regular!

Next on the list of fixing me, is a SeHCAT scan that I have tomorrow and again next Wednesday to see if I have a bile salt malabsorption. This is a double edged sword for me as it'll either show that yes indeed I have something wrong. Not ideal, but at least we'd know what we're dealing with. Equally if it shows that I don't have bile salt malabsorption, then we're very much still wondering what is wrong with me.

In other news, I started seeing the hospital psychologist. She's been amazing. She's helped me figure out that actually I am pretty well equipped with the 'tools' I thought I needed, and that maybe - just maybe - my expectations for myself were a little too high and that sometimes it's ok to just be ok. Being able to shift my mindset ever so slightly and not give myself a hard time when ill has done me the world of good. I feel more like I can take on the challenges Crohn's throws at me, whilst also maintaining my mama skills I was worried I'd lose because I'm the 'poorly mum'.

Towards the end of our last session we briefly discussed body image. I'd like to delve into this in slightly more detail so will do so in another post - mainly because it's something I've been struggling with of late, as I don't know what I look like anymore. What is my body after pregnancy and Crohn's flares? What shape am I? Who knows?! I certainly don't.

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Headspace

If you follow me on social media, you would have seen that this week has been quite a challenging one for me - especially with regards to my Crohn’s and how I’m maybe not handling it in the best way this time. It’s an emotionally draining disease: the rollercoaster of feelings you can have in such a short space of time is quite overwhelming and this particular flare up seems different. I don’t know why, it just does. In all likelihood it could be down to the fact that I currently have no ‘normality’ yet; I’m still in a settling in period. My mundane routines are shot to hell what with the relocation from London, being a newlywed, going back to work after Maternity Leave and the mum-guilt associated with that. My support network is still there, oh for sure. But my personal go-to coping mechanisms aren’t necessarily.

I guess I just don’t feel like I have that guarantee this time, where my mind doesn’t need to flap so much (I have zero reason to think things won’t be ok and I am more than aware at the irrationality *eye rolls at self*) But for instance, these are the things I worry about…how I haven’t been back at work long enough to feel like I can prove myself, e.g. when my insides go mental don’t worry guys! Because when I’m healthy, oh I’m grand. Or to know how to function as a Mummy when really poorly. Or worrying about WHAT IS THE ACTUAL PLAN WITH MY CROHN’S. And when you’re sitting in a hospital bed on your lonesome in the middle of the night, you can’t help but let your mind wander.

There just seems so much uncertainty and for a woman who likes a plan…this one’s tough.

I spoke with my IBD nurses at the hospital and they recommended reaching out to the psychologists here. I’ve always been very vocal how for me counselling has been a great help – I’ve tried a variety over the years from one-to-one youth counselling, to a more general CBT approach and also group sessions for people with other chronic conditions. And now I feel that I need another outlet. For who I am as a person now. As a mother. As a wife. As a new West Country bumpkin. Where do I fit in and how do I learn how to manage with my Crohn’s for the current set up? Excuse the wanky term, but that’s a ‘journey’ that I’m going to have to go on and hopefully find out some of those answers.

I need to learn that only I put pressure on myself to be worrying for everyone one else in the world. But hey, once a worrier! But also that it’s key to know it’s all right that there’ll be things out of my control and everything will be just fine whether I’m in hospital or not. Whether I sit in this bed for another two weeks or I’m allowed home tomorrow. And that I’m also no use to anyone if I don’t allow myself time to get better: do as I’m told. Do as the doctors say. Rest when told. Let my body do its thing. Because my Crohn’s alone looks to be laden with many more hurdles and challenges over the coming months and I need to be ready for that. And it’s something I’ll be sharing with you all for sure.

From a more general standpoint as it stands with regards to my care, we are yet to manage a full meal. However we have had the camera up the ass today – wonderful Friday morning activity – and also had another x-ray to see what the bloody hell is happening inside me. There is a pesky 30cm section of small intestine that was found back in Summer 2015 and it was something we were ‘keeping an eye on’. Well the eyes have been subsequently peeled and nothing has changed so… but herein lies the problem. 30cm is a sizable chunk of small intestine. We don’t just whip that out willy nilly now guys. When discussing the large intestine, there are slightly more options surgically speaking – in that you can actually take it out completely if needs be. But when it comes to the unusually named small intestine (bearing in mind you have around 6m), you can’t live without that. And the more you chip away at it with resections, the more you leave yourself susceptible to future complications. Nutritional issues, feeding through tubes, being open to more serious diseases. Lovely stuff. So we’re tackling this from a medical point of view first. We’re mixing up the meds. We’re changing the doses. We’re hoping that I haven’t indirectly been overdosing on azathioprine as my weight has dropped. To quote the surgeon, is the resection off the table? No, not particularly. Is it something that requires urgent intervention this week? Also no.

So it’s time to get my game face on. It’s time to get my headspace sorted. Take those 3 minutes a day to meditate and zone out. To plan whatever is within my remit to prepare for.

And know that the rest will sort itself out.

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All New

*I've amended the heading for my blog, as I'm not sure how long 'new' lasts with regards to being a new mama. And am now no longer wedding planning as I'm a wife. But Crohn's is still ever present. We can talk about that another time perhaps?

Since I last blogged...

• We relocated from London to the Westcountry
• Moved in with the in-laws
• I came off of Maternity Leave and am now a full time working mother
• We got married!
• Had a minimoon, sans son
• It's our son's first birthday

So everything's still a bit new for me.

Having a blogging hiatus seemed slightly more acceptable when I sat back and realised how much change was happening in my life. I also feel that I very much wildly underestimated what the above tasks would entail; in both a physical and mental sense.

We'd covered all major life events in a period of around 8 weeks - never mind the sister-in-law's wedding, cousin's wedding and all the hens and stags in between. I think by the end of October I had decided that 'time' wasn't a thing any more. It didn't exist. It either went way too fast or chunks of time seemed to disappear without warning; not enough hours in the day, etc. etc.

So you're probably thinking, everything seems to have calmed down a bit now - why hop back onto the blogging figurative bicycle and share my thoughts? Well...this is by no means a 'woe is me' post; however I've mentioned before that sometimes slapping the keyboard with my feelings is quite the therapeutic task in itself. I've been thinking a lot about blogging of late - whether it be to help actually process all the change that's gone on, the fact my son is reaching his first birthday milestone and all that it brings with it (parenting highs, lows, challenges and rewards), that my own little family has done a full relocation of living and work, life as a newlywed (and what that even means?!), or that my Crohn's is still a pain in the arse and it bothers me.

I want to post about each of the main topics over the next week or so, as I'm currently signed off work (there's a wee insight into how my Crohn's is doing! *collective sigh*) But having blogged on and off for the last four years, I know when things have been on the tougher side, writing has really helped. Equally when things are on the lovely side, it's really enjoyable to write and share those moments, too.

And what better way to start again, than in two days time when it's our first born's FIRST BIRTHDAY. He's been here a year already. Out of the womb and our bab for a whole 12 months. I still don't feel like I was pregnant long enough to have grown him, let alone see him doing proper human things on his own like an independent chap. But he's here. And he's going to be one this weekend.

For he's a jolly good fellow...

Side note: having had a full life change of geographical location, working situation, my marital status and introduction to parenthood - I'm now trying to work out what Hattie, etc. actually means. So I'll get back to you on that once I've worked out what direction this here blog is going in.

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Breast Foot Forward

As I sat in bed this morning, night light on, feeding my son, I took a moment to enjoy and appreciate the close bond that breastfeeding has given me and my little boy over the last three months.

I always said that I wanted to be able to breastfeed exclusively for the first two weeks of my child's life - which I did - and that if I could, I'd like to get to six months; even if that was through combination feeding. But tried to maintain a 'what will be, will be' type-vibe (so many opinions and pressures for feeding a baby, as I'm sure you're aware. Is my baby being fed? Yes. Great. As you were then). I've been combination feeding for a good while now and I wouldn't change the routine we've fallen into, by any means. However I always thought that when I chose to stop breastfeeding it would be just that: my choice.

Mother Pukka X Parent Apparel jumper with all my parenting feels

Good ol' Crohn's and the rules that go with the scans and sedation that I need means that my breastfeeding days might be numbered. If ever there was a sign that we go full bottle, it's being told that for 48hrs after my MRI and at least 48hrs after the sedation, I cannot breastfeed. Granted I could express to keep my supplies up and running, but it works out at almost a week long with the appointments being so close together. So maybe I take stock and prepare for the changeover.

I'm just finding it all a tad tricky, you see...everything a double-edged sword. As much as I love the morning feed when it's all quiet and just bab and I, both half asleep, it's probably for the best that any energy I do have, I keep for myself so I can be a relatively functioning human being and be there to provide whatever my son needs.

*Haven't actually done this, FYI*

I'm also incredibly nervous about the forthcoming investigations; the MRI I thought had been parked for the colonoscopy, is in fact going ahead as they called me yesterday. So I had my pre-assessment yesterday and my bloods done (gosh, so tired), I have my scan next week and the colonoscopy the week after. BUT WHAT ARE THEY GOING TO FIND?! I know I'm not well. For God's sake it hurts to have the little man even lean on my tummy. Standing is also generally becoming a bit uncomfortable; it's easier to walk hunched over like Quasimodo, but it's also not a look I recommend when trying to push your pram.

We'll see though. I've done this before. I've definitely been through worse with my Crohn's. Got to keep the long game in mind; experiencing the changes in my son each day and that come Autumn, I'd like to be able to walk down the aisle without looking like I'm from the Hunchback of Notre-Dame.

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Return of the Ass Invasion

Not a sequel I'm particularly keen on, but it was only a matter of time until it was a knickers down/knees up appointment with the gastro team. And after what I thought was an MRI in the pipeline it appears that nope, let's get me in for a pre-assessment and colonoscopy in two weeks time. Joy. When the hospital called I thought it was to schedule in the aforementioned MRI - but it seems that my 'case', if you will, has been discussed in the clinic between the consultants and the best route forward is to get up all in my insides instead.

I know I'm not well at the moment (still essentially green in complexion because I'm so pale) and the bags under my eyes now have their own set of bags. I just get this massive anxiety over what they might find when they're routing round my intestines - especially now I've got the small human to be there for and to look after. I don't want to be the poorly mama. I want to be enjoying every mini milestone he hits as he grows and not need to abandon winding him because I need a sit down. He'll be three months on Friday and in the grips of teething so needless to say it's all just getting a tad overwhelming at present.

But despite my finding it tough at the moment, his beautiful little face makes every day seem that bit easier. Such a great distraction from the inevitable shits and pain.

I would just like to get the ass invasion over and done with and the medical plan put in place; I've got a wedding to plan and a baby to be with.

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I'm Pooped

If I've had an unintentional break from blogging, I always find it easier to pick it up again when it's Crohn's related. I don't know if that's because my Crohn's escapades always leave me wondering and subsequently that means I've got a lot on my brain that I need to let out. But either way. Here we are.

So as you are aware, I have Crohn's Disease and last year I also fell pregnant. As I mentioned many a time in my pregnancy posts, I considered myself super lucky to be able to enjoy every aspect of pregnancy like a 'normal' person with my Crohn's essentially putting itself in remission whilst I grew a human.

Well, said human is now out of me and 10 weeks old on Friday. And lo and behold we're back aboard the gastro train and it's like my Crohn's never left. (Wah).

Casually still waiting to be seen. Everyone else had left. Even the cafe had closed.

I had my catch up with my gastro consultant last week for what can essentially be described as a prelim to what looks to be an MOT for my postpartum body; all the bloods due to be taken and a small bowel and pelvic MRI in the diary. I think I spent the first month or so of motherhood pretending that I was perhaps more well than I actually was. No one should be shitting blood at the frequency I am and I think I tried to just get on with it for longer than I should have. And now I'm where I am now, which is scared to eat for fear of the impending bloodbath out my back nethers.

This in itself is a catch 22 as I'm still breastfeeding (technically combination feeding but the boobies are still required multiple times a day) and as any breastfeeding mother will know, it makes you oh so hungry. Any new parents will also know that looking after a new baby makes you rather tired (!) So this, coupled with the blood poos is all adding up to one mama who's so pale she's see-through and in need of a ruddy good lie down for about 8 days.

Don't get me wrong, I was never expecting my Crohn's to calm down when preg and I also wasn't expecting it to stay away once my bab was born. But if I was to say that I'm not sad about these latest developments, I'd be lying.

However I have to look at the bigger picture now I have a son and my stubbornness and my pride has to take a backseat when it comes to my health and looking after my baby boy. Would I rather stay breastfeeding but getting more poorly because I don't want to take certain medicines? Or do I take the medicines that would mean I'd have to stop breastfeeding, but can ultimately feel better? Obviously it's the latter. I just hope that the MRI isn't complete doom and that there's something we can do in the short-term so I can get back to being mama. Even if it's a mama who shits a lot.

And my poor bab having to get dragged on his Sleepyhead into the bathroom 10+ times a day. Hopefully he's far too young to be scarred by the experience. But everybody poos. his mama just does it more than your average.

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PS: My hospital is in Westminster. The day of my appointment was also the day that they had to close and evacuate Westminster Bridge due to a WWII bomb discovery in the River Thames. Let's hope that's not an omen of any kind, hey.

Planning a Planned Arrival

Can't quite believe we're so close now! We had our 34 week appointment today with the c-section doctors, which naturally got me thinking about how you plan for a planned arrival...

I'm very much in the stage of pregnancy where I am completely freaking out, my dreams are stupidly vivid, I can't sleep for baby movement and all I can do is worry about what lies ahead. Will I be a good mum? Will baby be ok? What actually happens in a caesarean? I've read a lot recently that confirms that all of the above is normal and of course it's good to share my thoughts because it's not unusual to worry. It's a huge thing, after all! We've made a human being. I'm just going to have to wait and see, as I can't get myself all worked up over the unknown (a mantra I lived by with my Crohn's).

But my appointment today made me a tad nervous; it's the same as with my Crohn's ops in that you essentially consent to everything and wait and see what we find when they open you up.

We had confirmation today that due to previous abdo operations, my Gastro team will be in the theatre with the c-section team, myself and my other half. Hopefully when they make the incision, my bowel and scar tissue haven't caused too much of a problem in which case the Gastro team can bid farewell and then we can get baby out in a routine way. If however it obstructs what needs doing to access baby, they'll do their bit and then let the obstetricians take over. A little revolving door of surgeons around my nethers, if you will.

Like with any surgery there are risks; although there's been talk of a stoma and colostomy beforehand when I had my resection back in 2013, I didn't realise that it could be something that pops up in regards to when I deliver my baby. I guess in my mind I kept my bum issues separate from my front bum bits. There are of course risks associated with a routine c-section too, with everything from wound infection and bleeding to a hysterectomy. So yes, I'm a little worried. But as I used to say with my Crohn's ops, I was just another bottom to them - and this is just another caesarean. We have planned as much as we can and all we can do is hope that everything runs smoothly! In 30 days time.

Now I'm officially on maternity leave (post following shortly) I am just going to put all my energy into nesting and try not to let my worries get the better of me. And I'm also going to avoid reading some of the shite on the internet about how a c-section is the "easy way out" and that I'm "not giving birth" as I've had my baby "surgically removed".

I'll have to get back to you on that.

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Pregnancy Lent

Kind of. We're now less than 40 days and 40 nights and there will probably be a lot of pancakes consumed by yours truly.

Officially (as I type) we have 37 days to go until our c-section date and the list of things to do/buy before the human arrives is getting that bit smaller; which means it's getting that bit more real still. I said at the start of blogging about my pregnancy that although it's Biology 101 for how a baby is made and grows, it is still one of the most fascinating things I have ever experienced in my life. I still consider myself extremely lucky to have had a relatively 'normal' pregnancy with regards to my Crohn's calming down - and if it comes back once bab is out, then I will cross that bridge when I get there. But at least I've been able to feel like I have carried this baby with little to no complications thus far. Just can't let my arse fall out at the final hurdle, to quote my gastro surgeon.

Talking of bottoms...seamless link...

I think more needs to be said about HOW CONSTIPATED YOU GET IN THE THIRD TRIMESTER. Let alone how you feel like Windy Miller with the air just falling out of you, top and bottom. I'm a disgrace. Thank god I've been with my other half for 9 years, because the romance has well and truly died recently! I'm not used to having bowel movements like a bus service on a Sunday in a village. My bowels pre-preg were a 10-15 times a day situation. I don't know how to deal with this once a day malarkey!? How do you people do it? I feel like it's just not enough. But hey, if bab slows down my digestive system to a snail's pace, then that is the less frequent shitting hand I've been dealt. It frees up so much time! Although saying that, the toilet dashes have been replaced by toilet dashes...just for a number one instead. But still so much quicker! Even if you need to do all the weeing, what with the baby pushing down on the organs. And sneezing still makes me nervous, mind - ruddy pelvic floors *squeezes muscles*

Did a version of a #bumpingalong for my 33 weeks (got to get the lift pics in whilst I can) and I'm kitted out in head to toe maternity Topshop. Even gave a nursing bra a run out and I felt so free. Big ol' wobbly mama-to-be boobies. And despite my breasts being the largest they've ever been in my life, my baby bump is so much further out - hence my human pyramid effect.

So yep, this week and it's my last week of work; all finished on Thursday. I will do a final work-based #bumpingalong and a post about maternity leave, as I'm already finding the concept quite odd. It's a real mix of emotions.

But for now, I think I've done a good bit of oversharing...

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The Age of the Potato

It's happened. I've become a human spud in the torso.

Had a christening over the weekend and despite feeling all sorts of lovely in my dress, looking back at photos I can see that yes - my body has become one big potato. My bump is very out now. And I've learnt that from this point forward, it's where I put on 1 to 2lbs/week as part of pregnancy. Let the expansion continue! It's also easier for me to get through gaps head on rather than turning sideways and knocking everything with the bab bump.

Here's my week 32 #bumpingalong (trying to stay on top of it!) and I am wearing maternity leggings from ASOS with a non-maternity tunic type dress from last year's Topshop in a size 12. The dress was a go-to when I was Crohn's bloated - 'tis nice and roomy in the middle and the pattern is also great camouflage.

Baby has been a regular hiccupper for a good few weeks; I read somewhere the other day that says if baby is hiccupping too much after 32 weeks that it's something to talk to the midwife about? Has anyone else heard this? I believe it's because it could mean the cord is around the small person's neck. Keeping an eye on that fo' sho. Although my first-time-parent anxiety is somewhat alleviated now we've reached a point in pregnancy where if baby arrives, we're medically kind of ok. Ish.

The movement from this baby though! It's incredible, albeit painful at times, how much they move around. And to feel an actual body not just seeing my belly wobble. The moving is making my other half oh so excited to meet our baby...it makes my heart swell seeing him like this. I can't wait!

Don't get me wrong I am still panicking about everything else that being a parent involves as there's only so much prep you can do before they're here. It's 45 days until this baby is definitely out of my womb and into my arms.

And this is my last full week at work.

HOLY SHITBALLS.

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Half Time

So although Monday was my 19 weeks, it was officially my halfway point as I'm booked in for my c-section at 38 weeks. Where has the time gone?!

Also had the hospital on Monday to see the Crohn's midwife team - I explained to them that I'd been feeling a tad under the weather the previous week but wasn't able to tell them if it was Crohn's, pregnancy, or a combination of the two. Got my bloods done to check all my levels for general pregnancy but also IBD and they said they would be in touch if something came back off kilter.

Then there I am yesterday at my work Summer Festival with a missed call from the hospital. WAH. Luckily they called back; I was dreading it a bit as they said they'd only call if the results weren't fine...Turns out it wasn't my Crohn's flaring which was a massive relief - my inflammatory markers were hardly noteworthy. It's my iron.

I've always been borderline anaemic for as long as I can remember, but on the right side of normal, still. It seems that now my iron levels have dropped quite a lot since being preggers and my hemoglobin levels are rather abnormal. Still no giving blood for me then! Oopsy daisy. I'm putting this decrease in iron down to essentially being a vegetarian because meat is still making me feel poorly. Looks like I'll have to go on prescription iron for a while to make sure that I'm not a temporary narcoleptic whilst growing the bab and to also make sure I eat more spinach like Popeye for an extra boost. Just not looking forward to the side effects of the iron tablets (oh my Crohnie bowels).

But enough about that! Onto the nice things! Here's me #bumpingalong for week 19 in a maternity purchase from asos in a size 10, plus my new 'mum' barnet. Look at my bump...it's getting so big carrying my mango-sized baby. Ahh.

This baby is so active though! I find it all so amazing and surprising as I am only 19 weeks - I feel lucky to be experiencing such movement already.

We were starting the foundations of nesting for after our scan next week and there was one moment this weekend where our baby was going nuts! I didn't even have to get baby daddy's attention as it was so noticeable through my clothes. Our baby is definitely in a routine now, so I'm aware of when to keep an eye out for the dancing and can move my Kicks Count band around another number.

Am hoping to capture the moving on video and if I do I will share on here. It's magical/like something out of 'Alien'.

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Dietician Time

Got the hospital tomorrow morning to see my gastro dietician. It's a scheduled appointment from the end of last year for Crohn's, but has actually come at the perfect time in my pregnancy. This is because I want to put my mind at rest and make sure that I would be able to put on the required weight for baby and me.

I say this based on how my body can drop weight so quickly when flaring and generally how hard it can be to put weight on with Crohn's (unless you're on steroids - hello swollen moon). Over the last few weeks my weight generally hasn't changed. Like to the decimal hasn't changed, at times. But now it's creeping in the right direction which is good!

As I mentioned in a previous post, my Crohn's is as calm as it's been in years. But being pregnant has played havoc with my eating; I've completely gone off meat, and in the first trimester I was feeling nauseous all the time so eating was tricky. Despite taking the pregnancy supplements, I want to know that I am eating all the right things for a good healthy development of the little human.

Being in the glorious second trimester I have my appetite back now so I'm excited to see what recipes I can come up with that tick all the nutritional boxes for the two of us (!) based on my catch up tomorrow with my gastro dietician.

I'm making a conscious effort to eat well with these new culinary cravings and it's given me an opportunity to explore the vegetarian world a little bit - my favourite being a vegetarian chilli con carne with all the beans that I rustled up. So good!

Will post a few of my favourite recipes for any of you foodies out there as I get more adventurous with the ingredients.

But as it stands, bring me all the food. I'm ready.

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Journey to Bump

The road to pregnancy was an odd one for me. Not that there's a normal route to being preggers, mind. But before you read on, I don't want you thinking that this post is about the birds and the bees. It's more...the birds, the bees and the bowels? Bowels being the key part.

Having Crohn's and knowing that at some point in my life I wanted to have a baby, was a combination that I'd worried about since I was first diagnosed; I was advised to look at freezing my eggs (as fertility in Crohn's patients wasn't the best). The thing is, the thought of actually having children was so far away in my mind at the time, that it was strange to potentially make that decision at the end of my teen years. Who knew how I'd feel in five, ten years time?

I decided not to freeze my eggs. I felt that if having a family naturally was something that I was supposed to do, then it would happen. If not, then so be it. I'm a strong believer in a family being a family regardless of its set up and how you all got there.

When I got to an age and stage in my relationship where talking about having a baby was a real thing, I had so many questions for my consultants...Can I have children? If I am fortunate enough to have children, are they going to get my Crohn's? How would Crohn's effect my pregnancy? Will I be able to have a natural labour due to all my previous operations?

In a nutshell...I'm pregnant. So it seems that in the first instance, yes I am able to have children (well at least conceive). Whether this baby that I'm currently growing gets my Crohn's? That I don't yet know. Crohn's & Colitis UK's info on Pregnancy and IBD says that "5 out of 100 children born to couples where one parent has Crohn's might be expected to develop IBD. Even with genetic predisposition, other additional factors are probably needed to trigger IBD." We will just have to wait and see and hope that our baby is as healthy as can be.

With regards to Crohn's during my pregnancy - this has been a complete turn up for the books! It seems being with child is the best medicine! Who knew pregnancy would be so beneficial to my bowel?! As it stands my Crohn's has calmed down immensely; for the first time in years all my levels are settled and I'm not worried if I sneeze, I'll poo. If anything, it's quite the opposite. It's like my body has forgotten how to go to the toilet-toilet and that's the oddest sensation for someone that has, on average, probably shat 10-15 times a day for the last 7 years. If TMI, sorry. But, you know...Crohn's.

Fiancé and I are in the midst of talking to the antenatal team about my staying on Azathioprine and whether we go back on Humira. As unlike Aza, they're not yet sure on the use of Humira in the third trimester (although if urgent/required then they'll let you. Pros and cons, etc.) But it looks like I may not need Humira after all if things stay the way they are!

Then that leads me to the last question in my little list of worries: labour. The grand finale to this whole musical that is pregnancy. Actually getting the miniature person out of me. Gosh.

I won't be allowed to do any pushing as - to quote my Crohn's surgeon - "my arse would fall out" and I for one am not ok with that and neither are they. We're all also keen to make sure that me and baby are safe, however that needs to be done. So elective cesarean it is. Scary thing is, is that our c-section date is already booked in! I now know categorically that I'll have babe in arms at 38 + 4.

Unless the little human makes an early arrival.

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World IBD Day

Today is the 19th May and that means one thing...it's World IBD Day!!

This year Crohn's & Colitis UK have made it their mission to highlight the importance of Specialist IBD Nurses, as they make such a great difference to patients' lives.

I remember when I met my first IBD Nurse back in 2009 at Chelsea and Westminster. Her name was Stephanie and she was the support I needed at a time when it seemed like my whole world was about to change. She spoke to me like a person - not just a hospital number - and understood that there was an emotional side to my diagnosis and that it was important to know she was there if and when I needed her. Her role for me at the time included everything from a long conversation at my appointments, ending them with that reassuring squeeze; right up to sending her a text message when I wasn't sure if I was A&E worthy with one of my many abscesses.

I'm now in a fortunate position again where at my current hospital there are a team of Specialist IBD Nurses, with a dedicated phone number should I have any queries about my care or condition. But I know I'm one of the lucky ones to have these amazing people at my disposal. There are countless IBD patients who are yet to experience how beneficial Specialist IBD Nurses can be.

According to the Crohn's & Colitis UK website, across the UK there are at least 100,000 people with IBD that don't have access to a Specialist IBD Nurse. With 63% of IBD services in the UK unable to meet the needs of everyone affected.

"[Specialist IBD Nurses] are a lifeline, providing vital information and support in the most appropriate way for each patient. The care they deliver is invaluable and they help hundreds and thousands of people cope with this devastating disease. We need to shout loudly the importance of Specialist IBD Nurses to ensure more patients have access to them."

Their campaign 'More IBD Nurses - Better Care' still needs a few signatures to reach their goal of 1000 people. Please take a look and if it matters to you, please sign!

There are around 300,000 of us in the UK, and millions more around the world living with IBD: we need to use #worldIBDday to continue to spread awareness and make a difference where we can.

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Across the UK, at least 100,000 people with Crohn’s and Colitis don't have access to a Specialist IBD Nurse and 63% of IBD services in the UK don't have enough Specialist Nurses to meet the needs of everyone affected. - See more at: https://www.crohnsandcolitis.org.uk/get-involved/world-ibd-day#sthash.VPtKm7VK.dpuf

That’s why we’re asking you to go purple on World IBD Day, Thursday 19 May, to help raise awareness of the 300,000 people in the UK, as well as millions more around the world, who are living with Inflammatory Bowel Disease (IBD).
This year we also want to tell everyone about the importance of Specialist IBD Nurses who make such a big difference to patients’ lives.
Across the UK, at least 100,000 people with Crohn’s and Colitis don't have access to a Specialist IBD Nurse and 63% of IBD services in the UK don't have enough Specialist Nurses to meet the needs of everyone affected.
They are a lifeline, providing vital information and support in the most appropriate way for each patient. The care they deliver is invaluable and they help hundreds of thousands of people cope with this devastating disease. We need to shout loudly about the importance of Specialist IBD Nurses to ensure that more patients have access to them.
By joining our 'More IBD Nurses - Better Care campaign, you'll be lending your voice to call for better access to Specialist IBD Nurses, meaning better care across the UK.
- See more at: https://www.crohnsandcolitis.org.uk/get-involved/world-ibd-day#sthash.VPtKm7VK.dpuf

That’s why we’re asking you to go purple on World IBD Day, Thursday 19 May, to help raise awareness of the 300,000 people in the UK, as well as millions more around the world, who are living with Inflammatory Bowel Disease (IBD).
This year we also want to tell everyone about the importance of Specialist IBD Nurses who make such a big difference to patients’ lives.
Across the UK, at least 100,000 people with Crohn’s and Colitis don't have access to a Specialist IBD Nurse and 63% of IBD services in the UK don't have enough Specialist Nurses to meet the needs of everyone affected.
They are a lifeline, providing vital information and support in the most appropriate way for each patient. The care they deliver is invaluable and they help hundreds of thousands of people cope with this devastating disease. We need to shout loudly about the importance of Specialist IBD Nurses to ensure that more patients have access to them.
By joining our 'More IBD Nurses - Better Care campaign, you'll be lending your voice to call for better access to Specialist IBD Nurses, meaning better care across the UK.
- See more at: https://www.crohnsandcolitis.org.uk/get-involved/world-ibd-day#sthash.VPtKm7VK.dpuf

That’s why we’re asking you to go purple on World IBD Day, Thursday 19 May, to help raise awareness of the 300,000 people in the UK, as well as millions more around the world, who are living with Inflammatory Bowel Disease (IBD).
This year we also want to tell everyone about the importance of Specialist IBD Nurses who make such a big difference to patients’ lives.
Across the UK, at least 100,000 people with Crohn’s and Colitis don't have access to a Specialist IBD Nurse and 63% of IBD services in the UK don't have enough Specialist Nurses to meet the needs of everyone affected.
They are a lifeline, providing vital information and support in the most appropriate way for each patient. The care they deliver is invaluable and they help hundreds of thousands of people cope with this devastating disease. We need to shout loudly about the importance of Specialist IBD Nurses to ensure that more patients have access to them.
By joining our 'More IBD Nurses - Better Care campaign, you'll be lending your voice to call for better access to Specialist IBD Nurses, meaning better care across the UK.
- See more at: https://www.crohnsandcolitis.org.uk/get-involved/world-ibd-day#sthash.VPtKm7VK.dpuf

It's only been 2 years

And my hasn't it flown by?!

A brief update wouldn't go amiss, otherwise you're probably wondering why do I even need to start reading this blog? Who even is this rambling person that just pops up online after a two year hiatus?

Well that person be me, my friend. Harriet, off of Harriet's Got Crohn's that has now decided to be called Hattie online. Sure. Let me try it out. See if it fits. And so far, I'm quite the fan.

It would be easy to say I don't know where to begin, but then that doesn't really help much with an 'update' per se. So maybe it's best I do a quick run through on the Crohn's to get the medical bit out the way and then we can talk about all the fun things that have happened and are happening!

So...

Can't remember what operation number I was on when I last blogged, but I've now had 14. Most recent being another pain in the ass one in December 2015. Care still under the Gastro team at Guys & St Thomas' which is hands down one of the best hospitals I have ever had the experience of being looked after by. They couldn't be more aware of what's going on with me individually and when I'm there I don't feel like just another hospital number. I feel like a person.

To be honest, that's probably why I haven't felt the need to blog for such a long time as - although I haven't been well - I've had a much better support system from the people qualified to help me when I'm ill. And it took me moving hospitals countless times to realise that it shouldn't be an unusual feeling; to feel like you're being looked after when you need it, by the professionals who are there to help you. So yes. Still very much team Guys & St Thomas'.

Meds-wise, I still struggle with the whole Humira injections and have been told off many a time for bad adherence. So we're currently on hold with that whilst they see if Azathioprine can do the job on its own for a while. If it can, ace! No more spring-loaded pens into the abs of steel (ha! Who am I kidding?! No steel here) Will make sure I keep you in the loop with that one. Meds, not my six pack development as that is totally not a thing.

Talking all things body...you may recall a post or 9 about the weight gain from all the medicines I've had over the years. Well the heaviest I got to was 75kg. Now at only 160cm it doesn't take a genius to work out that I was past the point of plump. Then the fickle finger of fate stepped in and through another flare up I went back down to my natural weight of 53kg. Only problem was that it was in a period of three months - so all eyes on me from a medicinal point of view. Doctors everywhere. All the tests. But since coming off the multitude of meds my weight has plateaued and we're doing ok!

No remission officially as of yet, but hey, it's already been 7 years since diagnosis and no remission. What's another 7 or so!?

I think that covers it from a health point of view. I'm sure if it hasn't I'll be blogging about it now I have definitely got the blogging bug back whilst typing this *excitable scream*

Hmm. Now what else has happened since I've blogged last. Oh I don't know. OH YEAH. I GOT ENGAGED.

Officially a grown up. A Mrs-to-be.

All very exciting. All very romantic. Many things to plan. Many things to think about. So many wonderful things to look forward to over the next year.

And that's where the glamour of Crohn's brings you straight back down to earth; when you look at wedding dresses online and consider the ease in which you can go to the toilet toilet. What a bride I'll be.

But now you'll all be there as part of the journey, too.

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