Sunday, 19 May 2013

It's World IBD Day!

Happy World IBD Day everyone!

Hopefully we are all now a bit more aware of Inflammatory Bowel Diseases?!

There was a symposium at Birmingham Children's Hospital today - unfortunately for a variety of personal reasons, I couldn't make it :( but I am intent on hearing all about it, nonetheless!


From the hashtagging on Twitter just after midnight on 19th May, it made me feel proud to be a Crohnie.

I loved the feeling of unity to help raise awareness of the little buggers that are IBDs...

It only takes a second to search 'World IBD Day' on Twitter to see the number of people discussing, tweeting, retweeting all day.

Nice one guys!

Here's to finding a cure!

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Thursday, 16 May 2013

I just don't know...

...what to do with myself.

I have essentially shed a small tear every morning: I like to plan an outfit, as I'm quite the flapper in a morning routine and it's normally impossible to get myself out of bed.

The problem is, what I have laid out to wear is normally ruined by the fact my bloat has not changed shape or size in the night. It's driving me crazy!! None of my clothes are fitting me anymore - even my loose ones - and I'm not prepared to go out and buy maternity clothes to cater to my bloat I shouldn't even have.

To add to my woes (dramatic, I know), this week is completely dragging; all I need to do is get to Monday and see a person face-to-face at the hospital.

But then this is a dilemma, as it's my birthday a week Tuesday and it's also Bank Holiday weekend. Anyone that's had a stay in hospital knows weekends aren't exactly fabulous for care at the best of times. Let alone a three day weekend.

So what do I do? Wait to see what the doctor says on Monday, and hope he doesn't send me in just before the long weekend? Surely if my scans were super bad, someone would have already been in touch?

But then again, you would have assumed someone would have been in touch already with a follow up appointment from my scans three weeks ago?!

And another thing which has really ground my gears is that what I have planned over the next week or so, were things I booked before my operation in January - on the hope that I would be fully recovered and able to properly enjoy it all. Except I'm not fully recovered. I'm essentially where I was 6 months ago.

Why does it constantly feel like I'm going around in circles?!

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Tuesday, 14 May 2013

Wow

I hit 15,000 views on my blog.

THANK YOU!

I decided that because of this, I would pimp it out and add some new pages (which you can see across the top bar...) And then I thought, why not go crazy and make it an official website. So I did!

The old link will now redirect you to www.harrietsgotcrohns.com

How exciting! *does a crazy dance*

I think the ol' cliché I'm looking for is...Go big. Or go home.

So I went big. And it's all down to you guys :)

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Monday, 13 May 2013

Exciting News!

I have some exciting news to share with you all!

The Crohn's and Colitis UK Press Office has been in touch with me, and asked if I would write a guest post for them.

OH YEAH.

Once it's written and live, I shall share the link through here...and they have told me they will put my post up on meandibd.blogspot.co.uk, tweet about it, put it on Facebook and also on their main website www.meandibd.org. So I'm very flattered to be asked to get involved!

Here's the thing; I have free reign over what topic I can write about.

Most of what I write is based on my day-to-day activities and challenges with me and my Crohn's - apart from the depression post. And although I have an idea of what I may write about, I wanted to check with you guys to see if there was anything in particular you'd quite like me to cover?

My initial thoughts was going to be based on me and my bloat - as it's such a MASSIVE part of me at the moment! And so look at the difficulties in feeling feminine when you don't have a waist, on how hard it is to find clothes to fit you when you don't need maternity...and kind of see where that takes me...?

But if any of you have a topic in particular you'd like me to write about, please either leave a comment on here, email me (harriet.c.stevens@hotmail.com) or tweet me (@Harriet_Pure) as I'd really like to hear what you all have to say!

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