I appear to be becoming quite slack at regularly posting - but it's only because I've started a new job and it is all very very busy!
I'm sure once everything has settled down it will give me the opportunity to post more often.
So a quick update from where I left off:
- Had the hospital last Thursday; generally good news with regards to results from the colonoscopy and MRI. My doctor did tell me that although there were signs of inflammation, it was general Crohn's stuff so nothing I can really do about that other than keep on the meds!
- I've officially been put back on Azathioprine now; didn't get on well with this AT ALL last time. But he explained how I shouldn't really be on Humira on its own (why I didn't know this before is beyond me)
- And obviously I did the honest thing and told him about the lump on me backside. He said it seems superficial and not too much to worry about - but because of my history he has put me on antibiotics. Not Metronidazole though which is a plus! As after 10 times with that and 10 ops regardless, it's nice to know there is an alternative. However, as with all my lumps on bums, if nothing has changed within ten days then I am back into see him for a meeting with the surgeon for another EUA.
Reeeeeaaallllyy hoping it sorts itself out as I love my new job and don't want any unnecessary time off (one could argue an op is in fact necessary, but you know what I'm trying to say!)
My doctor also feels that once I see the dietician (mid-October) that I could actually be in a position where my Crohn's is relatively under control. Music to my ears!!! But he did say he's still a bit baffled with the bloat as medically, all my things check out normal...
Now. My old hospital sent me a letter the other day. This was a double-edged sword really, as it contained the results from the CAT Scan I had a little while ago (good) but also a sentence which really ground my gears (bad)...
"Miss Stevens did not attend her Outpatients appointment today. I hope this is not been due to an administrative error."
WHERE DO I START?!
I'm not too sure how many departments I have to call again to inform them that I have left the hospital and joined a marvellous one?! Also. Why be so quick to reference my not turning up/administrative error when I spent over six months fighting with the administrative system!?
Anyway, ranting aside, the letter said the following: The SeHCAT scan has revealed severe bile salt malabsorption with a total body retention at day 7 of 1%.
That doesn't sound too great, but it seems to be easily fixed. Doesn't explain the bloat though, just the watery insides haha (sorry if you're reading this over lunchtime)
And on that note, I am off to get some lunch myself.
Taraa chaps!
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